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    Celebration (Finished treatment): A PET scan revealed lower levels that we were looking for. However, the best news was just from Otolaryngologist who could comment on the healing of the sinus area.

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    Drug or Chemo Therapy (Chemotherapy): Was administered cisplatin and etoposide on Wed, Thurs, Friday every other week. I always felt very sick over the weekend. Had 4 rounds of this treatment. Rounds were postponed 2 or 3 times for low white cell count. 4th round really knocked me down. Worst side effect was nausea, hair loss, and constipation (from anti-nausea meds). Name brand medication Emend really helped out. Lost 40lbs over the entire time period. Doctors recommended 6 rounds, but I opted to stop after 4. Hearing loss was recorded, still have ringing in my ears. Still stand by decision of stopping early.

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    Radiation (External radiation ): I had 30 radiation treatments (5 days a week for 6 weeks). The last 2 weeks I did not feel like working and I really needed skin cream. Hair was lost (temporarily) in radiation pathway.

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    Procedure or Surgery (Surgery): Tumor resection took place on July 5th, 2011. The procedure lasted almost 12 hours and I was in the hospital for a week in recovery. I was back to work 2 weeks after the surgery though.

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    Oh No (What is Esthesioneuroblastoma?): I could not find much documentation regarding Esthesioneuroblastoma. It was very frustrating trying to find out details, stories, and cure rates. I was also very concerned identifying the correct cancer center to treat this diagnosis. It is very important to find a well respected neuro surgeon and otolaryngologist. The duo needs to work well together and utilize the latest in surgical technologies.

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    User: GregP_WN