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    Buddyritz shared an experience

    Loss: My wife died on Mother's day, May 10th from MDS, an illness called Pre-leukemia. She was cancer free after chemo treatments but the result of the chemo was fatal. My heart is broken. Our 57th wedding anniversary was today, May18th.

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    Buddyritz asked a questionNon-Hodgkin Lymphoma (NHL)

    MDS after chemo treatments for NHL last year

    4 answers
    • po18guy's Avatar
      po18guy (Best Answer!)

      Sorry to hear this. There are several varieties of MDS, from low-risk to high, progressing to AML as you have noted. 4+ years ago, I had 26% immature blasts in my marrow, but of a low-risk mutation. I do not know if you have seen this, but here is a link to the National Cancer Institute's information page on MyeloDysplastic Syndrome:

      https://www.cancer.gov/types/myeloproliferative/patient/myelodysplastic-treatment-pdq

      As well, if you are in the US, and she is not being seen at a National Cancer Institute designated comprehensive cancer center, I strongly urge her to be seen at one. They possess the latest in research data, perform clinical trials and employ the best and brightest. Find the nearest center here:

      https://www.cancer.gov/research/nci-role/cancer-centers/find

      7 months ago
    • Buddyritz's Avatar
      Buddyritz

      Very comprehensive information from the link you recommended, po18guy. Thanks saved that link

      7 months ago
    • Buddyritz's Avatar
      Buddyritz

      Thanks for the info JLC

      7 months ago
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    Buddyritz asked a questionNon-Hodgkin Lymphoma (NHL)

    MDS after chemo treatments for NHL last year

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    Buddyritz shared an experience

    Side Effects (Fatigue (tiredness)): It has been about 11 months since any trace of the original cancer. I have reported in the past about extreme fatigue and tiredness. The root cause has been identified as anemia and inability to produce platelets from a condition called MDS or pre-leukemia. This has been verified by a bone marrow biopsy. My wife is now being treated for this condition with a series of transfusions of blood and platelets. In addition, she has started to receive a series of injections through her port of a chemo drug for this condition and will receive in the future a pill orally, also a chemo drug. We have been to the hospital at least two times a week in the past 30 days for transfusions, one time for 9 hours for both blood and platelets. We think that we have little chance of a semi-normal life. We have an appointment in December with a doctor at U of P with a specialist who deals with this disorder. I don't know what she may do. It may have been the resultant effect from the original chemo treatments last year. Anyone dealing with this problem too. Is there a light at the end of the tunnel?