• Buddyritz's Avatar

    Buddyritz asked a questionNon-Hodgkin Lymphoma (NHL)

    Weakness after chemo ended in January of this year

    • Gumpus61's Avatar
      Gumpus61

      The effect of chemo is cumulative, that means it is worse with each treatment. Recovery is never back to the way things were. The chemo kills fast growing cells and the systems all over the body are damaged in some way. Accept these shortcomings as they are part of the deal. The chemo is meant to kill the Cancer just a bit faster than it kills you.....be patient. You are blessed to have her.

      18 days ago
    • Buddyritz's Avatar
      Buddyritz

      I am enlightened but sad at your answer. it does make sense. Thanks for responding. JLC

      18 days ago
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    Buddyritz started following

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    Buddyritz shared an experience

    Celebration (Finished treatment): I wish to thank God and His mother for looking after us. I wish to thank the doctor who guided us and recommended the chemo treatment that we finished New Year's Eve. The subsequent tests for my wife, a CAT scan and a PET scan, showed NED. The XXX or purgatory we experienced is over. It all started on the 4th of July last year. We start a new year with hope and cautious optimism. Barring any complications, we have an appointment in 3 months and further testing in 6 months. No one can predict the future or the malady that will eventually kill us, but we can celebrate now for having come this far. Thank you to all the people of What Next that replied to my questions at various times. I wish all the best.

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    Buddyritz wrote on GregP_WN's wall

    Thanks for the info. JOE

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      You're welcome, let us know any time you need anything. There are lots of people here that will help.

      9 months ago
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    Buddyritz wrote on po18guy's wall

    Diffuse large B cell is the description, if that helps to explain the sub type. JOE

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    • po18guy's Avatar
      po18guy

      Yes, that does help. If it is not "double-hit" or "triple-hit" then it is fairly easy to place in full response. Even if it relapses, there are many options. However, many receive long-term remissions from primary treatment. All the best to the two of you!

      9 months ago
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    Buddyritz asked a questionNon-Hodgkin Lymphoma (NHL)

    What Next for someone told they are cancer free

    6 answers
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Both, celebrate and continue to be cautious. There are survivors who never reach NED and are on maintenance for months and years after frontline chemo, I celebrated with my husband when my post chemo CT scan showed NED. Your doctor said NED however and did not use the term cured. Going forward stay vigilent. Follow up blood tests and exams are common for sirvivors, especially the first two years post chemo. About your wife’s fatigue , this is a very common side effect with chemo. Her strength should slowly return. It is important for her to keep slowly but steadily increasing her daily activity to tolerance . Getting up, out and about, is often the best medicine once treatment ends. Wishing you continued better days ahead.

      9 months ago
    • Gumpus61's Avatar
      Gumpus61

      I am a care giver and we have had the NED declaration 4 times in the last 5 years. That cycle repeating has left us with a simple philosophy. The Bucket list is simply a life well lived, so we live well awaiting the day they say there is nothing more we can do. Perhaps NED might mean this to you. Cancer will not take you this day, this month, this Year........who gets that guarantee ? Approach what is next that way and have a great year !

      9 months ago
    • macfightsback's Avatar
      macfightsback

      I have been through having cancer, receiving chemo and then being declared NED twice. I am cancer free now ( as far as I know.). Many people feel weaker and not back to their "normal" as it was before cancer. It takes time to get your strength back. This happened to me both times and I felt more like my old self after a couple of months. I agree with cancer there is never a guarantee it will not return sometime after treatment. I held my breath for 2 years when I was cancer free, fearing reoccurrence. Then it came back last year. I won't do that again! I suggest you both celebrate her NED diagnosis. Start making some plans for fun activities you enjoy. You can start small. I put bird feeders up in my front yard because I love birds. I do some very amateur photography of animals and plants. Next week I am off to a 5 day winter vacation. I have a companion Siamese cat who gives me joy everyday. I treasure good times spent with family and friends. Carpe Diem! Seize the day. Yes, certainly continue to be vigilant regarding your health. Go to your follow up appointments. Report any new symptoms. Yes, sometimes what seems like a symptom of reoccurrence is not. I decided I had melanoma in my left foot because it was a strange lesion I had never seen before. It must have been an insect bite because it disappeared in a week. Your life is changed forever once you are diagnosed with cancer. The secret is that information should not prevent you from finding joy in your life.

      9 months ago