• Buddyritz's Avatar

    Buddyritz shared an experience

    Celebration (Finished treatment): I wish to thank God and His mother for looking after us. I wish to thank the doctor who guided us and recommended the chemo treatment that we finished New Year's Eve. The subsequent tests for my wife, a CAT scan and a PET scan, showed NED. The XXX or purgatory we experienced is over. It all started on the 4th of July last year. We start a new year with hope and cautious optimism. Barring any complications, we have an appointment in 3 months and further testing in 6 months. No one can predict the future or the malady that will eventually kill us, but we can celebrate now for having come this far. Thank you to all the people of What Next that replied to my questions at various times. I wish all the best.

  • Buddyritz's Avatar

    Buddyritz wrote on GregP_WN's wall

    Thanks for the info. JOE

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      You're welcome, let us know any time you need anything. There are lots of people here that will help.

      6 months ago
  • Buddyritz's Avatar

    Buddyritz wrote on po18guy's wall

    Diffuse large B cell is the description, if that helps to explain the sub type. JOE

    1 Comment
    • po18guy's Avatar
      po18guy

      Yes, that does help. If it is not "double-hit" or "triple-hit" then it is fairly easy to place in full response. Even if it relapses, there are many options. However, many receive long-term remissions from primary treatment. All the best to the two of you!

      6 months ago
  • Buddyritz's Avatar

    Buddyritz asked a questionNon-Hodgkin Lymphoma (NHL)

    What Next for someone told they are cancer free

    6 answers
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Both, celebrate and continue to be cautious. There are survivors who never reach NED and are on maintenance for months and years after frontline chemo, I celebrated with my husband when my post chemo CT scan showed NED. Your doctor said NED however and did not use the term cured. Going forward stay vigilent. Follow up blood tests and exams are common for sirvivors, especially the first two years post chemo. About your wife’s fatigue , this is a very common side effect with chemo. Her strength should slowly return. It is important for her to keep slowly but steadily increasing her daily activity to tolerance . Getting up, out and about, is often the best medicine once treatment ends. Wishing you continued better days ahead.

      6 months ago
    • Gumpus61's Avatar
      Gumpus61

      I am a care giver and we have had the NED declaration 4 times in the last 5 years. That cycle repeating has left us with a simple philosophy. The Bucket list is simply a life well lived, so we live well awaiting the day they say there is nothing more we can do. Perhaps NED might mean this to you. Cancer will not take you this day, this month, this Year........who gets that guarantee ? Approach what is next that way and have a great year !

      5 months ago
    • macfightsback's Avatar
      macfightsback

      I have been through having cancer, receiving chemo and then being declared NED twice. I am cancer free now ( as far as I know.). Many people feel weaker and not back to their "normal" as it was before cancer. It takes time to get your strength back. This happened to me both times and I felt more like my old self after a couple of months. I agree with cancer there is never a guarantee it will not return sometime after treatment. I held my breath for 2 years when I was cancer free, fearing reoccurrence. Then it came back last year. I won't do that again! I suggest you both celebrate her NED diagnosis. Start making some plans for fun activities you enjoy. You can start small. I put bird feeders up in my front yard because I love birds. I do some very amateur photography of animals and plants. Next week I am off to a 5 day winter vacation. I have a companion Siamese cat who gives me joy everyday. I treasure good times spent with family and friends. Carpe Diem! Seize the day. Yes, certainly continue to be vigilant regarding your health. Go to your follow up appointments. Report any new symptoms. Yes, sometimes what seems like a symptom of reoccurrence is not. I decided I had melanoma in my left foot because it was a strange lesion I had never seen before. It must have been an insect bite because it disappeared in a week. Your life is changed forever once you are diagnosed with cancer. The secret is that information should not prevent you from finding joy in your life.

      5 months ago
  • Buddyritz's Avatar

    Buddyritz shared an experience

    Drug or Chemo Therapy (Chemotherapy): Wife had 5 chemo treatments. One left to get on New Year's Eve. She is diabetic and weak and tired most of the time. She has a port in her chest and must have a Neulasta Device attached to her to get an injection from the device. It has to stay on her for 28 hrs. She has a bad back which acts up occasionally. Her diagnosis is NED just after her second treatment but must continue to the end. Our lives have changed and will be different in the future. I know others have it worse, but we are both 75 years old with all that goes with that age. Just venting now after much hard work to survive. Thanks for reading and some people who have responded to my questions. Joe(her husband)

  • Buddyritz's Avatar

    Buddyritz asked a questionNon-Hodgkin Lymphoma (NHL)

    Weak and tired all the time

    13 answers
    • Gymmom's Avatar
      Gymmom

      I would ask them to keep a close eye on her hemoglobin count (Hgb). I dealt with several episodes of anemia which required blood transfusions. I was told it was pretty common. Here are a few symptoms of anemia: hearing your pulse in your ears, pale inside the eyelids, dizziness, heart pounding when you walk from point A to point B. There are lots of others that you can Google. I was transfused when my Hgb was 7 or 7.5. Some people are transfused sooner.

      Chemo is exhausting in itself, but anemia is also a possibility. Remind her that she's 2/3 of the way through treatment. That's always great news.

      7 months ago
    • HeidiJo's Avatar
      HeidiJo

      I had small cell type B Lymphoma. I had R-CHOP chemo. I was also very weak and tired. It did get progressively worse with each treatment. My advice would be to take it as easy as she can...and that it will take a long time to bounce back after treatment. At least it did with me, Tell her to be kind to her body and to listen to what it is telling her. Thoughts and prayers to you both

      7 months ago
    • Buddyritz's Avatar
      Buddyritz

      Thank you everyone. More water may be the answer. She was drinking water less than before for obvious reasons.

      7 months ago