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    User: sarge68

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    buffalogirl wrote on msfullofhope's wall

    Hello msfullofhope,

    Our stories sound similar. I know the news is grim at first with the average life expectancy being 12-18 months. But my doc said everyone is different and that I had age and my healthy lifestyle on my side. You are young too so I'm positive you'll beat this. You have a great attitude! It shows in your screen name :)

    Isn't it funny that people associate cancer to hair loss...seriously??? That was the very least of my worries, right? While you're waiting for your next step you should research IA Chemotherapy and see if you are a candidate and if your Dr. or hospital performs this. It stands for Inter or (Intra) Arterial. I had the choice to continue with oral chemo or IA which was more aggressive so of course I chose that path. It increased my chances by 50% to make it to 5 years. I was able to travel and do everything as usual including running and downhill skiing in between treatments. I'm a little nervous coming up on my 5 year anniversary but my oncologist says that after 5 years the Iikeliness of a reocurrence is reduced so there is hope!!

    I wish you the best and will be following your progress.

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    User: msfullofhope

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    buffalogirl wrote on msfullofhope's wall

    I hope you're treatments are going well. It seems like a lifetime ago but as I was updating my story it all was vividly clear (well most of it). It is a long journey but I really feel fortunate. how are your treatments going? Are you in pain and/or do you have strong side effects?

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      msfullofhope

      Thank you for asking. I am doing very well. Except for hair loss and a bit of weight gain from the steriods, I have great energy, had no nausea or other negative side effects. The toughest issue, so far, was that I developed apshaia , and for me, that was tough as I am a social worker and being able to communicate, verbally and in writing, is critical. I will say I have learned a lot of lessons from this "visitor" (brain tumor) and I am trying to slow down, not work so hard and appreciate those amazing people in my life. I am a bit nervous during the end of radiation and this 4 week break from temador and having to wait for my first MRI post radiation, but I am optimisitc see my self as well.

      almost 5 years ago
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    Other Care: I was going in every 3 months for MRI's since my treatments finished up and now I go in every 4 months and am happy to say that I've had clean scans since May, 2009.

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    Decision Point