• Callejal's Avatar

    Callejal shared an experience

    Oh No (Cancer has spread/Metastasized): I get a skin check on a regular basis and nothing was found. Now I find out I have Melanoma, and it's spread to my lungs. The Dr thinks maybe something was removed at some point, and not sent for a biopsy.

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    • Dick_K's Avatar
      Dick_K

      So very sorry to hear your news. If you are not seeing a melanoma specialist, you should consider doing it; at least for a second opinion. You also need to be tested to see if you are BRAF positive as that information will allow you to better understand treatment options. I was diagnosed 8 1/2 years ago with melanoma in my lungs and I have been on vemurafenib now for 8 years. Best of luck to you.

      over 3 years ago
    • Callejal's Avatar
      Callejal

      Thank you Sandi, Terri and Dick. Your comments are encouraging. I started Yervoy and Opdivo March 20th I had a really bad allergic reaction to one of the drugs. My Dr decided to stop the one of the drug I forgot which one. I had my second infusion 4/10 and so far so good. I did get tested for BRAF and I'm negative. :( I wish you all the best.

      over 3 years ago
    • Terri's Avatar
      Terri

      I am sorry you had that experience, Callejal. Don't be discouraged. I have failed therapies, most notably the TIL therapy which was a whole year at NIH. I am still here. There are other therapies. I am thankful for the new therapies. When I was dx there was little hope. Now there is.

      over 3 years ago
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    Callejal shared an experience

    Oh No: After 3 years and 10 months of remission I now have new and active MM cells on my spine and hip. We're waiting for 3 months to re-due the pet scan, and we'll reevaluate at that time. I'm non-secretory so proteins don't show in my blood work.

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    User: rfillhar