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    CancerChicky shared a photo

    Wall_can_t_remember_your_name

    I have this problem terribly bad. I have tried different methods to remember names when introduced, but 5 minutes later I have no idea.

    4 Comments
    • GregP_WN's Avatar
      GregP_WN

      I have had that problem for a several years. It is so bad with me that I will try to write down their name when I hear it, that's the only way I'm going to know what it is later.

      8 days ago
    • BoiseB's Avatar
      BoiseB

      My problem is I don't hear well so I get names wrong I was calling a lady Kat for weeks until we both attended an event that required name tags and hers read Patricia. By the way she still looks like a Kathleen to me.

      7 days ago
    • BobbyZ's Avatar
      BobbyZ

      I have this issue too, sometimes I just blame it on my lack of paying attention. It seems I don't even have enough energy to listen to people talk.

      7 days ago
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    CancerChicky asked a questionMalignant Mesothelioma

    I have been told that chemo and radiation will affect all of our senses. Which of yours have been affected?

    • IKickedIt's Avatar
      IKickedIt

      Taste buds. My family couldn't believe they were watching me, the Queen Chocoholic, spitting out chocolate! It lasted throughout chemo, but resolved and now I am back to being the lover of anything once again! (and the weight came back on, darn it!)

      Eyes were never affected nor was my hearing, however, I suffered from severe bilateral vestibular dysfunction because of the platinum-based drug I was on (fried inner ear and affected balance). Platinum-based drugs can affect hearing, too.

      And yes, certain things smelled funky to me, but my family assured me it was only my sense of smell that was weird. And that also resolved for me soon after I finished chemo.

      8 days ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I am going next week to have my eyes checked to see if they have been impacted by my treatments. I have tinnitus pretty badly, but I can't remember if I had it before treatments or not. My taste buds are fine ... if anything, I started liking more varieties of foods and I think my sense of smell is as good as it ever was. I only have touches of neuropathy and that only comes occasionally so I'm going to say "feel" is okay, too.

      8 days ago
    • GregP_WN's Avatar
      GregP_WN

      I lost taste in all of my three diagnoses, lost weight, I couldn't tell about sight or hearing. My smell seems to have been enhanced. That's about all I could tell.

      8 days ago
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    CancerChicky asked a questionMalignant Mesothelioma

    How many scans can our body take in a lifetime? When is it too many?

    7 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      @andreacha, sometimes, my radiologists complain about the lack of dye, but I've seen the scans ... they look pretty clear to me... I went into shock from the dye one time - it worried them a lot ... so my files are marked and double marked ... no iodine dye!!!! (I had a MRI and I mentioned to them that I couldn't have dye. They told me theirs was different and wouldn't bother me. I was a little worried, but they were right. Thankfully, though, my kidneys are okay so far so we don't have the same concerns as you do!!!

      about 1 month ago
    • SandiA's Avatar
      SandiA

      @LiveWithCaner how did you know you developed the allergy. I had a scan yesterday and had the dye. It went well and I always get that warm feeling but yesterday it felt warmer and lasted a little longer. About the time I was going to say something it got better. So i didn’t but I wondered if you can develop a reaction after years of no reaction.

      about 1 month ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      @SandiA, the first time I had an allergic reaction, I thought I was having a panic attack. I could barely breathe. I sat out front in the lobby for a few minutes and talked to myself about panicking. (I do not have anxiety attacks and had no reason to have an anxiety attack, but I never dreamed I was having an allergic reaction.) I didn't say anything to anyone and it got better after a bit of time.

      Too bad I didn't pay attention or know that what I was experiencing was a problem. The next scan, there was no hiding the fact that I was having symptoms. The moment they unhooked me, I had a terrible taste in my mouth (more so than normal), was so dizzy I could barely walk, and was very, very nauseous. I could also not catch my breath. I sat down for a few minutes again in the lobby, trying to get control of myself (STILL thinking I had some kind of emotional issue going on).

      Someone came in while I was trying to get my breathing right, talking about drinking banana barium. That sent me running to the bathroom, where I threw up multiple times. A doctor came into the bathroom while I was there and was really worried. I told her I was on my way up to the chemo lab to get my port de-accessed. She'd already alerted them that I was coming before I managed to get there.

      Fortunately, we had taken my blood pressure and oxygen and stuff when they accessed my port so we knew what was normal ... and everything had gone bonkers. I can't remember if it went high or low (or both) ... but nothing was normal. They went into emergency mode, got me some benadryl and I had to sit there for several hours while they hydrated me, gave me intravenous drugs and watched me like a hawk! Naturally, I had gone for my scan alone so had no one to drive me home. They really wanted me to get my husband to come get me, but I'm so hardheaded that I drove myself home when they finally deemed I was stable enough to be let go.

      I have never, ever had an allergic reaction. This one literally nearly killed me. I had been getting the iodine every 6 weeks for years with no problems. There is something they can give you if you have a reaction, but my doctor just has orders to not give me iodine dye. The radiologist can just suck it up and read the scan without it rather than put me in harm's way again...

      Soooooooooooooooo.... with all of that said ... do you have the results of your scan yet? I know there's been some worry and I'm hoping that is resolving itself in a way that says there is no more worry!

      about 1 month ago
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