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    cancersucks4us wrote on rach713's wall

    6sorrentino As I am new to this system, I just read your post which seems like it was posted 2 months ago, so I hope this finds you well. I was in stage 3 fourteen years ago when was taking Interferon treatments and I was doing aggressive....that's three times a week so I know exactly how you feel, but you can do it. DRINK WATER #1 on the importance of this journey, DON'T BE OUT AND ABOUT AROUND PEOPLE NO MATTER HOW YOU FEEL #2 on the importance because your immune system is being weakened by these drugs whether you realize it or not. Until someone tells you with a MD behind their name that you are in remission, stay around your ownn germs as much as possible GET PLENTY OF REST #3 on the importance meter because you pretty much can sleep and rest while you eat and try to keep food down and laying still improves the odds of you not dehydrating yourself and revert back to #1. I lived for another eight years after all of that cancer free.....check back and I will tell you what happened then!!! lol

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    cancersucks4us started following

    User: GregP_WN

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    cancersucks4us shared an experience

    Celebration (Cancer is shrinking): Yahoo!!!! My latest ct scans revealed shrinkage of tumors by 98%.....they will lay dormate, but never go away since this is my second time but I am looking forward to many more years with my family. This can only be maintained however, with the drugs I am currently taking in the dosages that have been stabilized for me to live a semi-normal lifestyle, but with restrictions due to health unstability. Still, up and walking around and not stationary anymore and def not six feet under!!! Doing the best I can, but now we have to talk about the stuff that happens to you when you survive.....defeating the government is my newest challenge. THEY HAVE CANCELLED THE ONLY INSURANCE THAT I HAVE FOR NOW!! Well, guess I will have to live to XXX them off!! Any help from a willing participant would be greatly appreciated though, just in case they change their minds and cancel my only way to life currently, the clinical trial. Meanwhile, my daughter and I live on limited income, and I mean for a very limited income, but in a category where it is still a struggle....my teenage daughter has been here with me through all of this and maintained her great gpa and worked to help us since we have been cut from alot of aid that we were receiving because they say we make to much? Anyway, we are still here and I am hoping to write a book and maybe be able to get my daughter and my older children and grandchild things that they have deserved or at least leave them with something. I am trying to buy my house currently.....hopefully they will approve me!

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Thanks for sharing your experiences in such detail. This helps all the other members who are looking for information on your type of cancer.

      Thanks for being here, and please join in the discussions on the question board. You may be able to help someone that is in need of information.

      thanks again.

      over 4 years ago
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    cancersucks4us shared an experience

    Side Effects (Other): Side affects of the drugs I am on, vary from person to person as with all drugs. Mine have gone from extreme swelling and fevers with flu like symptoms to light and moderate pain, dehydration, and loss of any interest in sex. These depend on the amount of therapy given and the symptoms decrease when the treatment amounts are lowered while still maintaing a level of drug for your body to keep the tumors in a low state of what some people call, remissions.

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    cancersucks4us shared an experience

    Clinical Trial (Am still receiving Melanoma clinical trial drugs from reputable federally approved facility.): Very iffy to explain all my experiences due to the processes going through continually. The trial program is a great way to help yourself, help others, and the staff is great. The doctors do care more probably, because you are helping them to create their own determinations of newly innovative drugs.

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    cancersucks4us shared an experience

    Drug or Chemo Therapy (Chemotherapy and immunotherapy combined (biochemotherapy)): First chemotherapy treatments (2000) interfuron.....very harsh treatments of daily injections for 30 days.....they called it aggressive treatment. Completely harsh side effects from vomiting routinely, dehydrations, completely out of it for months. Second (2011) clinical trail drugs after being told could not take interfuron twice in lifetime.....Luckily, all of my tests and many prayers created a spot for me in the trial program because my body had been able to pass every test they gave me for the requirements of trial FDA, non-approved medicines.