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    Cancersuxs started following

    User: nancyjac

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    Cancersuxs asked a questionLiver Cancer

    Does anyone know if there is something else to take with or besides nexavar for people wit hcc?

    5 answers
    • Cancersuxs' Avatar
      Cancersuxs

      Thanks I have told the doctor the way my dad tells me. He says it feels like an explosion in his stomach for 1, he says he cant eat and starts running a fever, he mainly has real bad stomach pains and problems. He only takes a vitamin d pill. Which is what his Dr told him to take to help his bones. I am not to sure of his Dr. There is so many questions we ask and it is almost like he ignores them. We have recently found out that he has A spot on his lung now. They kept saying he has COPD. I just wish he can get the strength up to fight this. Thanks again! If u have anything else to help me help him it would be appreciated!

      Shay

      over 4 years ago
    • steve70x7's Avatar
      steve70x7

      I sure know what it is like to have a doctor that doesn't seem to listen! I recently got a new oncologist and she is awesome! She spent an hour with my wife and I. It didn't change my cancer, but it sure changed my attitude. It is a blessing to know that anyone cares, especially the one who seems to hold your future in their hands.

      Is it possible for your Dad to get another doctor? A friend shared with me a unique way to check out doctors. She goes to the office and sits in the waiting room and just talks to the patients that come in. If they aren't really enthusiastic, as I am about my oncologist, she goes to another office. She actually found a great doctor to replace the one she had that sounds like your Dad's doctor.

      I'll be praying for you and your dad.
      Steve

      over 4 years ago
    • steve70x7's Avatar
      steve70x7

      The commercial site for Nexavar has a lot of good information. I'm still skeptical about starting it, but it helps to be informed. I hope this might help.
      http://www.nexavar-us.com/scripts/pages/en/patient/index.php

      BTW: half of my doctors think Nexavar is a waste and the other half think I should already be on it. ???

      over 4 years ago
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    Cancersuxs posted an update

    Well they just took my dad off the nexavar for 3 weeks to see if u can try and gain some weight. And try and get some energy. If there is anyone that is reading this and on nexavar please write me. I am trying to take care of my dad the best way I know how. I need some advise and help me to help him.

    1 Comment
    • DaveWaz's Avatar
      DaveWaz

      This would be great to post in our Questions section. You can do this by clicking on the "Ask Network" link on your logged in home page or the "Questions" link at the top of this page. When you post needs/questions using our question feature, we route your question to everyone in the network who might be able to help. Also, know you can use the "Update" feature on the site to keep anyone who might be following you on WhatNext up to date.

      Good luck.

      over 4 years ago
  • Cancersuxs' Avatar

    Cancersuxs asked a questionLiver Cancer

    Has anyone been on nexavar for 1 or more years? If so how is it working for you or someone you know? My dad has hcc and does not have hepati

    5 answers
    • Nan's Avatar
      Nan

      Oh and to the other question. Until 5 years ago they did not even have nexavar, and no the other stuff they will shove at him is just poison for the sake of putting him through something, they will use him like a Lab rat.

      Is the Nexavar working? Make sure they give him something for the diarrhea and loss of fluids. They can and that will help a lot.

      Nan

      over 4 years ago
    • Dawg1's Avatar
      Dawg1

      I see this question was asked in March. How is it going for you ? My husband has been on nexavar for 8 months. He was on the full dosage of 4 pills until he had a bout with diarrhea and they took him off for about 2 weeks and reduced the dosage to 3 pills. You do have to monitor your blood pressure while on this and we use Immodium Ad for the diarrhea but so far the tumor marker is down to 5 and as long as the bloodwork looks good he can continue to take the nexavar. We asked the Doctor how long you can stay on the nexavar and was told some stay as long as 3 years. As anyone else been able to stay any longer?

      about 4 years ago
    • bchurch17's Avatar
      bchurch17

      My husband was on Nexavar for 6 months. He could only take two pills per day due to some side effects (blisters on feet ). The tumors did shrink but after 6 months they began to grow again. He is now off Nexavar and had chemo embolization last week. He needs another chemo embolization next month and then he will go back on Nexavar.

      over 1 year ago
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    Cancersuxs posted an update

    Wondering if any one can help me help my dad? Any and all advise will be appreciated. New to taking care of someone with cancer. Not sure what all to expect or do. My dad has hcc.

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    Cancersuxs shared an experience

    Side Effects: With the rad. it didn't work caused more problems. With the nexavar he cant take the full dose. If he does within 4 days he is in the hospital. Any one with the same problem? Can any one help with advise to help me help my dad?