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    candy started following

    Question: So much stress

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    candy asked a questionRare Cancers

    Has anyone ever been diagnosed with Gestational Trophoblastic Disease?

    • KarenG_WN's Avatar
      KarenG_WN

      Hi Candy,

      I have not seen this discussed on WhatNext, yet. So I am also going to reach out via Twitter and Facebook to see if we can find someone with experience to weigh in. In the meantime, here is some information from the American Cancer Society that might help:

      http://www.cancer.org/Cancer/GestationalTrophoblasticDisease/DetailedGuide/gestational-trophoblastic-disease-what-is-g-t-d

      almost 5 years ago
    • Jeniperlyn's Avatar
      Jeniperlyn

      Yes, i have been trying to create my profile here for a couple weeks and felt like a fraud trying to find the correct cancer to pick, I see you picked rare cancers....maybe I should change. I have been dealing with this disease since March of this year and have had 2 different types of chemo treatment the last being EMA/CO. I don't really know how this board works yet but, if you have any questions feel free to ask.

      almost 5 years ago
    • Jeniperlyn's Avatar
      Jeniperlyn

      Candy, do you happen to have a facebook account? There are some very good groups on Facebook and there is also a Dr. that you should email about your specific case, he can help you by telling you what your next step in treatment should be.

      almost 5 years ago
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    User: Stacy

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    candy shared an experience

    Drug or Chemo Therapy (Chemotherapy): Since I have been a patient at MD Anderson I have been on two different chemo regimines post surgery. My HCG levels will drop to negative when I'm on therapy but once I'm off they begin to rise again. My last chemo treatment was July 21st 2012 and unfortunately 4 weeks later my levels began to rise again. I've had ct scans since than which are negative but my number continues to be elevated. Right now as I wait for Dr. Lu to come up with a new plan, I'm enjoying my time off chemo. I have had chemothery for 2 years straight so, I'm in no hurry to get back on it. I'm enjoying my two beautiful daughters, Katalina 10, and Emily 5 and my wonderful husband. Until she informs me of our new plan, I will continue living life to the fullest.

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    candy shared an experience

    Decision Point (2nd opinion out of town.): After trying two different chemo regimines that weren't successful, my oncologist said there were no other choices left for me. He recommend I get a second opinion but I was terrified. I had all my faith and confidence in this one doctor that I felt if he couldn't treat me nobody could. My husband wasn't willing to give up though. He researched doctors with experience in my type of cancer (Gestational Trophoblastic Disease) and found one oncologist in particular in Houston at MD Anderson. He scheduled the appointment for me and within a week we were there. Dr. Karen Lu immediately knew what to do. She suggest getting aggressive by removing the tumors in my lung followed by more chemotherapy.

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    candy shared an experience

    Drug or Chemo Therapy (Chemotherapy): The first Chemothery regime that I was on was called MAC. I think after having your body injected with these poisonous drugs for the first time you go into a complete shock. My first treatment was absolutely horrible. The anxiety and nausea was definitely present. I was afraid, anxious and didn't know how to feel. I was very fortunate to have such great supporters, my family. However, I got through it and new what to expect for my next treatment. I had my Xanax ready and anti nausea medication and I have to say the second time around was a little easier on me. Every treatment after that became easier and easier except for the nausea. But, four regimines later I found a wonderful cocktail to help my nausea. I found that Kytril, along with a combination of Aterol, benadryl and Haldol (ABH) works wonders.