• Candycls' Avatar

    Candycls wrote on Carol-Charlie's wall

    You sure are an inspiration. My sister is in stageC111 primary peritoneum cancer, She had surgery One year ago' she is having such an awful time. Her surgery was 13 hours and she refused a clinical trial and has 13 weeks of carboplatin and taxoil. She goes Sept 25 for the results of her C125. If it is normal does that mean she is cancer free? She has an ostomy bag and a huge huge hernia, she wants it reversed yet it just seems so dangerous. She cannot accept any of this and I am trying so hard to keep her hopeful and positive, It is great to hear your story. But she has never read her pathology report and refuses to engage in any support groups. What would be the best thing I could do for her?

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    • Carol-Charlie's Avatar
      Carol-Charlie

      You've told her how you feel.... now listen to her. I had both knees replaced right after completing my chemo. I knew if I was going to live I wanted to walk, pain free. Knees are wonderful, no more knee pain... Danced at Grandsons wedding just last month... 6 1/2 years after being diagnosed with Stage IV Ovarian Cancer. Life is dangerous, but in my mind.... encourage her to have the reversal surgery... Hopeful is planning to get back to normal.. planning is for the future. Encourage her and follow her lead with what she wants. Don't let her wrap herself in cotton and stop living. I know I made up my mind to live until I die.

      over 4 years ago
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    Candycls asked a questionOvarian and Fallopian Tube Cancer

    Can ovarian cancer come back if C125 is normal?

    6 answers
    • Carol-Charlie's Avatar
      Carol-Charlie

      An elevated CA125 can be caused by many things thus it cannot be indicative of a returned cancer. It is indicative of checking further. Pain can cause a high reading... My knees were replaced about two months after my last chemo.... my number then dropped to 3... A PET CT Scan can give a complete picture, but these too present other complications to the patient. I'd had several, and the doctor wanted one last one. Then he was counceled to not have it as it could cause more of a problem with reactions to the radiation.... That was six years ago.... Still cancer free. I'm 69 now and still going in for CA125 blood tests every three months... I want to meet new family as they arrive... I already have a great grandson and great granddaughter... Danced at grandson's wedding on 8-18... What a wonderful day of family and love... I'm so very blessed to have faught and and held tightly to Gods hand.

      over 4 years ago
    • NanHope's Avatar
      NanHope

      Unfortunately ovarian cancer can come back any time. I was diagnosed a stage 1 (very high cure rate) and my cancer came back (and my CA-125 was NOT elevated at my recurrence). My recurrence was found completely by accident. I now get CT Scans routinely, even though that's not what my doctors recommend - i need to sleep at night! My cancer is silent, absolutely NO symptoms, so I need to keep on top of it. Ovarian cancer CAN come back even if CA-125 is normal...and yes, generally doctors do order a CT Scan for an elevated CA-125.

      Good luck and many blessings for your journey!

      over 4 years ago
    • graceann's Avatar
      graceann

      NanHope, your story is so similar to mine!

      Candy, CA-125 is a tricky thing. For some ovarian cancer patients it is an excellent tool, but for others not so much. My CA125 is always within the normal range yet I have recurring ovarian cancer. My doctor supplements my blood tests with occasional CT scans - usually every six months - because they are a more reliable tool for me.

      To echo other responses, other things might cause your CA125 to elevate, such as if you are fighting a cold, infection, or virus. If you become concerned, let your gyn-onc know.

      over 4 years ago
  • Candycls' Avatar

    Candycls posted an update

    My sister was diagnoised in Nov.2011.She has had debulking surgery, she is in stage C111.Has completed Chemo and her first C125 blood work was negative. She will have the next blood test done on Sept.25th. Her cancer was Primary Peritoneal cancer found on her ovaries , Fallopian tubes , bladder , rectum , colon.She is really having a very difficult time handling all of this. She refuses to even read the pathology report or acknowledge the serious of this cancer. Good anyone, help me maybe by sharing their experiences, or let me know some good resourses.I feel the more I know the better prepared I am to offer her , her much needed support. Thanks to all of you .Just know you are here is a great comfort.Best Wishes on all of your journeys.

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    • KarenG_WN's Avatar
      KarenG_WN

      Hi CandySis, I just saw your post. We have a number of ovarian cancer fighters who would be happy to connect with you. @Carol-Charlie and @mysecondchance are two great women who have been so helpful to others. I encourage you to read through their journeys and reach out, if you'd like.

      over 4 years ago
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    Oh No

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