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    CaptainBob started following

    User: CancerNews

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    CaptainBob wrote on Yoda's wall

    Sorry to hear you needed to start this journey. You will be in my thoughts and prayers.
    I hope you feel confident in your oncologist and surgeon.

    Remember " when you choose HOPE anything is possible"

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    CaptainBob wrote on FreeBird's wall

    My oncologist doesn't have me get a full liver panel yet. Normal weekly blood tests are cbc and cmp and an inr to monitor warfarin use. I guess I should ask about liver function at our next appt

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    CaptainBob posted an update

    Had a CT scan last week and went to chemo yesterday coupled with a visit with the oncologist to review results. It appears that the chemo is beating the cancer in my lungs, spine, and lymph nodes. The radiologist who wrote the report on the scan states that he sees "innumerable" new lesions in my liver though. The oncologist showed us the scan and none of us can see anything there that is new. We can see the improvement in the area where I had the chemoembolization but nothing else. I guess it is like Mark Twain said Opinions are like XXX ...everyone has one and everybody else's usually stinks.
    We are going to continue on the same chemo regimen for the next month and see what results are to be had in December when I get my next PET scan. Hopefully that will clear up the disagreement and we will get a consensus on what to do next to keep me up and running

    1 Comment
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      FreeBird

      Partial good news anyway, it seems. I hope your liver panel blood test still looks good.

      about 4 years ago
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    CaptainBob wrote on FreeBird's wall

    Doing OK had a CT scan about a week ago and will get the results at next visit with oncologist. Not expecting good news as I have been having pains growing all over my mid section and feel that the disease is progressing even though we have been treating with a very aggressive chemo regimen.
    Feeling a bit down as the side effects of chemo are wearing me out I cannot be even mildly active without losing my breath and having my heart rate go through the roof. I know that a positive outlook helps but having a hard time staying upbeat when all the news is bad. Jealous of people that say they continue to go to work while treating as I have been "one with the couch" because of my reaction to chemo.
    Continue to try every idea possible to gain the upper hand against this challenge but would really like a break to rest. The bad thing about that is I took a break for two months to try to get the chemo side effect under control and the disease went wild and stormed back and spread to areas that weren't effected before. Now the fight needs to go on in different directions and there seems to be no end in sight. I guess the good thing there is that the disease can't see and end either so we are at a stalemate until I decide to give up for as we know the cancer will never give up.
    On the brighter side we were told by our youngest that she is expecting our 5th grandchild in May 2013 . Another reason to fight on. We really didn't expect this one to have children but mother and father are both giddy with happiness and we are certain will make fine parents.

    Thanks for reaching out I have been looking for a place to vent some and this helps

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    CaptainBob posted an update

    have just progressed to the point that I am now diagnosed as a diabetic. Am on fast acting insulin and have been keeping my blood sugar under control mostly by diet using the insulin only once this week. I am on my recovery week from chemo and will be back in on the coming Wednesday. Does anyone have any tips for dealing with this new facet of my challenge or info regarding how insulin interacts with the chemo drugs?