• caralyn's Avatar

    caralyn shared an experience

    Decision Point: I have finished treatment and have just started going for 3 month checks at my oncologists office. I had an appt. yesterday which I had made 3 months ago. I had stressed that I only wanted to see my doctor. Never saw him, instead I saw his P.A. she called in two office workers when she did my exam. I asked her why my doctor was not there. I told her I had questions about my cancer and had been looking forward to talking with him She jut said she was helping him out and if I wanted, she could tell him to come in the exam room and say hello to me. He never did come and I was very hurt and angry. I was told by one of his office assistants that he has taken on a lot of new patients and only wants to spend time with them and some of his very sick patients. I was very angry when I left the office and he may have heard me saying some negative things about him. I have a appt. in Feb. but feel like I should not go to the appt. and instead try to find a new doctor. It is a shame because it is late to be switching when I am only going for 3 month check-ups. I am so very hurt by the office staff (3 young women) because it was known that I wanted to be seen by my doctor. Has anyone changed doctors this late and how did it work out? Thank you!

    1 Comment
    • Countrygal's Avatar
      Countrygal

      Caralyn-I have learned we need to be our own advocates. I don't understand why the PA found it necessary to have office staff observing the exam. Don't they have nurses or medical assistants for that purpose? If that happened to me, I would've been angry, too, and stood outside my exam room refusing to leave until he showed up. I began with Stage 3 endometrial cancer in 11/17 and my family & I were told at the post op visit that it was contained. I began going for 3 month check ups, alternating between my oncologist and a N/P (I know when the appointments are made who I am going to see and never have a problem). In 10/17, my oncologist told me I was "cancer free". However, when I returned in January for my 3 month check up, the N/P saw a spot, biopsy showed it was cancer and a CT scan ordered. the scan showed the cancer had metastasized in 7 areas. I had a second opinion with Dana Farber where I learned more about my cancer than I did from my oncologist who explained the cancer was there, just not visible I was angry because none of us were told this at the post op meeting. I switched doctors within the group because I felt I couldn't trust her any more. At our first meeting, I told my new oncologist why I was switching & I needed someone who was going to be honest, upfront with no holds bar. He agreed with me. Since then I have had no problems although I did go back to DF for possible clinical trials with his referral (none). I would call the office and make an appointment specifically for your doctor just to talk to him to get your questions and fears. When future appointments are made, find out then who you're going to see. Have faith!

      about 1 month ago
  • caralyn's Avatar

    caralyn asked a questionEndometrial (Uterine) Cancer

    do you know the success rate of radiation helping you ? It's 97.3 %

    7 answers
    • Skyemberr's Avatar
      Skyemberr

      Is saved me 4 times now! I'm definitely a lucky one and hope you are too!

      about 1 month ago
    • JaneA's Avatar
      JaneA

      It might be any comfort to you, but there are failures for surgical treatment of cancer too. I had a lung met, and my choices were SBRT radiation (success rate 80%) and a wedge resection (success rate 80%) so I chose the the SBRT radiation, only 5 treatments, because I was facing a BIG, complex surgery afterward. Best wishes that the next treatment is the charm.

      about 1 month ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Good luck! What did you find out?

      about 1 month ago
  • caralyn's Avatar
  • caralyn's Avatar

    caralyn shared an experience

    Decision Point (I have told the 2 women that work with my doctor that I just had a CAT scan and was concerned about being exposed to even more radiation and also there are quite often false positive showing you have a area in your body which needs further investigation s): I want to talk to him about my fears about this relatively new PET scan. I doubt he will change my mind. He does have the new CAT scan results which should be sufficient. I do feel bad about not doing what he thinks I need. But I have to do what is comfortable for me..

    2 Comments
    • Countrygal's Avatar
      Countrygal

      As I stated in another comment, I would call to make an appointment specifically just to talk to him before your February appointment so you can ask him why he wants you to have a Pet scan & talk to him about your fears & concerns. If the office sets up an appointment for a PET scan, inform them you are refusing to have it done until you discuss it with him. Stand firm & be your own advocate.

      about 1 month ago
    • caralyn's Avatar
      caralyn

      Thanks countrygal. Yes I did tell them no PET scan and my last appt he had his P.A. do the exam. I do like her very much but I had let several people (staff and office assistant) know that I always wanted to see my oncologist who is one of the top doctors in the Phoenix/Scottsdale area. He sees too many patients and has gotten too busy to see his established patients but I insisted on it. But my appt in Feb was DEFINITELY scheduled with the doctor. Hope you are well. Thanks for your comment, and for telling me about your own experiences with a reoccurring cancer I pray you continue to do well. It is scary going for 3 month checks.

      27 days ago
  • caralyn's Avatar

    caralyn shared an experience

    Decision Point (6 weeks after treatment ended I was advised to have a PET/CAT but elected to just have the CAT scan. my oncology surgeon was mailed the results.): Now a couple of his office workers/assistants have called me to tell me my doctor had ordered the PET/CAT scan. Just 2 days ago I received approval from my insurance company. The approval letter stated that the scan was from head to thigh and was being done to evaluate my tumor.

  • caralyn's Avatar

    caralyn shared an experience

    Decision Point (I decided to have all the radiation treatments my doctor told me it was very important.)