• Carolj0205's Avatar

    Carolj0205 started following

    Question: Working or not

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    Carolj0205 wrote on SueRae1's wall

    Thank you for your comment. Wow you are truly an inspiration as you've battled so much, coming out in top. Congratulations!

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    Carolj0205 asked a questionEsophagus (Esophageal) Cancer

    Any more than three year survivors out there?

    5 answers
    • ladyhawk's Avatar
      ladyhawk

      raising my glass to you! :)

      almost 5 years ago
    • BoiseB's Avatar
      BoiseB

      I am a three year survivor, of esophageal cancer. Last February, I got uterine cancer and when they removed the uterus they found esophageal tumors as well as the Uterine tumors

      almost 5 years ago
    • BoiseB's Avatar
      BoiseB

      Drive carefully and look both ways when you cross the street and you have a good chance of making it to five years

      almost 5 years ago
  • Carolj0205's Avatar

    Carolj0205 wrote on LeslieMJ's wall

    HI, my name is Carol and I am almost a three year esophageal cancer survivor.
    All the comments below are truly right, and wonderful.
    All I can say is that this cancer is not easy . Chemo and radiation are hard. Surgery that I had, was hard. Lots of residual side effects from treatment, but, I am alive!
    I absolutely loved having someone bring me some food I could eat, ...someone take me out of my home for rides, out shopping, or out to eat something...even if I didn't eat much. I enjoyed company. I enjoyed someone listening if needed, or just being there. I know my caregivers ( family) got worn out mostly by worry.
    So, I encouraged them taking breaks. Maybe someone can relieve you sometimes. There are stages of grief that are important to know that a social worker can help with. I find that checking with a pharmacist for side effects of drugs is very important. I found it important that caregivers know the side effects of treatment ( I am a nurse, so I could help educate someone trying to help me). I really enjoyed someone making an excell sheet for me of the meds I took, so I could mark them off. My memory was shot, and still is from chemo. I loved drinking Ensure for additional protein and nutrition, because I was nauseated, and had no interest in eating food or drinking fluids.it is also good to take because when your Mom loses weight her skin will easily break down. So, it is good to keep all skin clean, dry, but moisturizer. If she needs help to change positions , do that frequently. I sleep in a recliner, but cushion myself with pillows. Before, in active treatment, I had a walker, electric bed ( Medicare covers) . I really enjoyed doing activities that I like as much as possible..being realistic. I kept myself going because I had been a nurse, and kept reminding myself how many others I had treated that had far more problems than myself. I like a positive attitude, I surrounded myself with people who were positive, but could listen to me and encourage me to cry if I wanted. Any other info you might want, please feel free to ask. God bless you, and keep you strong, loving, patient, and human.

  • Carolj0205's Avatar

    Carolj0205 asked a questionEsophagus (Esophageal) Cancer

    Feeling "burning" like " on fire", in my chest at times

    4 answers
    • BoiseB's Avatar
      BoiseB

      I second CAS1. PHONE YOUR DOCTOR NOW. If your Dr. can't see you phone 911 and go to the ER.

      almost 5 years ago
    • Luvspuds' Avatar
      Luvspuds

      I am also a three year survivor and just went through a similar issue but had burning in more of my throat area and waking up in the middle of the night with severe acid burning, went immediately to oncologist when started was tested and was determined to be indigestion and put on dexilant. If I were u, I would immediately see your dr because you are already on indigestion meds and you should not be having this burning sensation in my opinion.

      almost 5 years ago
    • DaveWaz's Avatar
      DaveWaz

      Carolj0205,

      Thank you for sharing your question. Below is a link to a list of side effects of esophageal cancer and experiences from other WhatNexters with your same diagnosis. Maybe looking around this page could help you.

      http://www.whatnext.com/conditions/esophagus-esophageal-cancer/experiences/side-effects

      Best of luck!
      David

      almost 5 years ago