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    Carool started following

    Question: Cancer Guilt

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    Question: Just venting

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    Carool wrote on angelap's wall

    Angelap, thank you for following me. I'm following you, too. Wishing you as easy a time with your treatment as possible. You got this! Best, Carool

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      Carool

      Will you have someone with you? The first infusion is the scariest, as we don't know what to expect. The chemo nurses are usually wonderful and you should feel protected and cared for by those professionals. I had different chemos from yours: I had four Adriamycins with Cytoxans, each three weeks apart. Back then (18 years ago), Herceptin wasn't being given to non-metastatic HER2+ breast cancer patients, at least not at MSKCC, so I never had Herceptin.

      Chemo isn't fun but it's very doable, and the anti-nausea meds are even better than when I needed them.

      WhatNext is a great source of support and info, so you've come to the right place! I look at Reddit Cancer, too, and there are many young people on that site (I'm 69 but was around your age - obviously - at my diagnosis). However, I don't see on Reddit the kind of closeness that I see here.

      Well, again, I wish you a tolerable next few days, and keep us posted as to how you're doing. Hugs from Brooklyn!

      3 days ago
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      angelap

      Hi Carool, Well, I did it! My first infusion with Taxotere and Herceptin went better than I thought it would. I did have a friend with me during the infusion to keep me distracted and to drive me there and home, thank goodness! You are such an inspiration, 18 years ago! I am very happy to hear this! I know Herceptin is somewhat newer, too. Perjeta even newer and getting rave reviews at Moffitt, but the tumor has to be over 2 cm and mine was 1.7 cm so could not receive it. Although stage IA, due to being HER2+, they do give the Herceptin now. It can cause heart problems, so I get an echo cardiogram this Friday as well as every 3 months until treatment is over. The anti nausea meds worked for me! Not once of throwing up! Also took steroids the day following chemo. I got to walk on the treadmill yesterday and today! I am so glad I suffered through my port experience (the surgery) because it's a good send! I think I had a harder time with the surgeries because I had 3 surgeries (the 2 lumpectomies and port was another separate surgery) all within 2.5 weeks of each other! I was run down and feeling very sick and tired. Now I feel better, and get 3 weeks between treatments. Thanks for letting me know about Reddit Cancer site, I had not heard of it. Hugs from St Petersburg, FL to you in Brooklyn! Thanks for writing me! Angela

      about 8 hours ago
    • Carool's Avatar
      Carool

      Hi, Angela! I'm so glad that you're doing well after your first chemo, and thank you for letting me know. Wow, three surgeries in such a short time - very hard on one's body. I, too, had to have a reexcision after my lumpectomy, due to bad margins, but that second surgery was about a month after my lumpectomy. I wasn't even offered a port (maybe ports weren't so common then, as I don't remember anyone mentioning them in my MSKCC adjuvant treatment support group).

      As for my 18 years (so far!) of being okay, there are so many of us who are racking up the years. I am aware, however, that breast cancer can return, but so far I'm okay, though always anxious about my health and, now that I'm getting old, about the health of my boyfriend, friends, and brother (I've always been a worrier!).

      Anyway, I hope you continue to feel well, and, of course, let yourself rest when you need to, and let yourself feel whatever emotions ("negative" ones, too) come up (you'd be surprised - maybe you'd be surprised - how many of those diagnosed with a cancer think they have to be always positive about things - and I don't mean to sound patronizing now, so I apologize if I do).

      Hugs, Carol

      about 1 hour ago
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