I admit that sometimes I do look back, but I don't really think that I would make any changes regarding my treatment. I am pretty much at peace with my choices. Anything that I could undo just isn't that important to me any longer. I am just happy to be at this point and not too much any worse for the wear.
- Horn Lake, MS
- Member Since May 2012
Their Diagnoses (1)
- Patient: Breast Cancer
- Patient Info: Newly diagnosed (has not begun treatment), Diagnosed: almost 5 years ago, Female, Age: 55, Stage I, HER2 Positive: Yes, ER Positive: No, PR Positive: No
- View this journey (4 Experiences)
CASSIEME1 wrote on Gumpus61's wall
I read your testimony my heart goes out to you and your wife Ann.
I love you for the road you have traveled with Ann on her journey.i admire you dearly for being a real man, a real husband in your marriage and your vows. You know the real meaning of loving your wife as Christ loved the church, and showed that you truly took your vows. As a fellow cancer survivor still on this journey I thank you for (All).I understand you, my s/o has been the same. he hates to see or hear me say I am in pain. He went through this with his deceased wife. He has no siblings and she had no siblings. I feel truly needed and loved because he knew the path my journey may take and decided to be there for me. he also is a lung cancer survivor.
may God bless you and your family! Survivor hugs and kisses..xoxoxoxoxo
CASSIEME1 started following5 days ago
making a decision
I can't say that I look back on my decisions and wish I had done any of them differently. To be truthful, my oncologist didn't give me many choices, and if I wanted surgery, I had to get chemo like it or not. I guess the one thing I would change is insisting the doctors and nurses would be more forthcoming with me. I wish I had been warned that the 5 sitting up radiation treatments called for extended periods of time with my breast squashed between the paddles of a mammogram machine. Perhaps I wouldn't have been so frightened that first time when they left me in there and exited the room. They weren't coming back, and I couldn't see if they were watching me through any window. Prior to my first mammogram, it was my fear that I would be stuck in the machine and forgotten about, and here it was happening for real! I was trying to blink back the tears, and I was so relieved to hear the nurse say over the speaker that I only had a few minutes left. I think it would have been so much more bearable if I'd known so I could take Tylonol before coming down, and I could ask the techs and nurses to say something to me over the speaker every once and a while so I would know they hadn't left me all alone and trapped. HUGS and God bless.
I made the best decisions I could based on the information I had at the time, and I'm OK with that. Nothing on my journey has been straightforward or simple. Nothing. It's been strangely convoluted. The things that help me feel at peace with my decisions are these:
1. I have taken the time to do my research and have not gone into any medical appointment blind. Always be prepared. Don't be afraid to ask questions. Take the time you need before you making important decisions.
2. I "interviewed" at least two doctors at every step before making a decision on who I was going to go with and which hospital I was going to use. Some people get second opinions, I additionally "interviewed" and asked opinion questions about current and cutting edge research and trials. It was very telling to see which of them was keeping current in their field.
3. You are entrusting your life to a team of people. Make sure it is the best team you can find and that they are honest and answer all your questions. Character counts in my book.
4. Research the hospitals or practice your doctors are affiliated with. Resources and equipment can vary dramatically.
5. Quality of life matters. And sometimes little things (like icing your hands and feet during chemo) can prevent neuropathy or keep your nails from falling off. Details matter. Find doctors or other survivors who can help guide you through treatment.
6. The practice of medicine can have a lot of gray areas. Cost v. benefit can be unclear, especially when it comes to medicines that are also toxins. Sometimes there is no clear right answer. So you surround yourself with the smartest and most honest people you can find, educate yourself the best you can, discuss your treatment priorities/parameters with them, and know that you made the best decision you could with what you had available.
@CASSIEME1, wow. I am so sorry for the trials and tribulations. They are so frustrating and, can be very depressing, too. I am so glad your SO is right there beside you. Having a caring partner sure helps.
@Bug, i am so very, very sorry to hear that you lost your mom. Big warm hugs of comfort are winging their way to you right now.
the belt on my car broke which hit the clutch of the air conditioning unit and it hit the fuse box,, on an Altima there is 1 belt when it breaks it shuts down everything.
so sorry for your loss , praying for you and your family.
Thanks everyone for your responses.