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    Judyinthesouth wrote on Cat's wall

    You can't lose hope!!! Have you had any changes in your treatment lately? We have been a battle and we have to be strong soldiers. Prayer helps me when I feel down. The Lord feels so present and strong to my low spirit at times. He helps me know that I must trust my doctor and do what he says. I don't really have family support because I am a widow with no children. I do think it helps to talk with others. To see and know that life goes on... I was diagnosed 5 years ago too. I had lots of chemo, then stem cell transplant. I was wiped out for a year after the sct. No energy, just very tired.
    I still am tired a lot. And I still take treatments. After being on some of the newer treatments lately, numbers still going up. So my doctor added Kyprolis (one of first treatments I was on).. I think I may feel a little better. Life gets hard sometimes, but I just turn to God for help and strength and wisdom...which I need every day. I wish you the best! Is there a Cancer support group anywhere near you...I am sure that would help. I don't have one near me, that's why I like to use this site. I wish you the best! Judy

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    Cat asked a questionMultiple Myeloma

    How do I not loose hope

    16 answers
    • KatieL's Avatar
      KatieL

      Hang in there, Cat. Unfortunately, remissions end, treatments that were keeping MM in control stop working at some point, that is the roller coaster that is multiple myeloma. Fortunately, there are many treatment options now, and doctors are trying lots of different combinations that may work for patients. I know it is discouraging to be in your position just now, but I'm pretty sure your doctor can come up with a game plan to get your disease under control. Best wishes.

      29 days ago
    • BoiseB's Avatar
      BoiseB

      Cat this was just shared on Facebook I think you might find it encouraging http://immersive.healthcentral.com/more-conditions/d/LBLN/living-with-multiplemyeloma/traverhutchins/?ap=818

      29 days ago
    • po18guy's Avatar
      po18guy

      In my case, my faith sustains me. I have fought Peripheral T-Cell Lymphoma NOS three times since 2008, and in 2013 also developed Angioimmunoblastic T-Cell Lymphoma. Last year, I was treated for both of those and developed Myelodysplastic Syndrome, a bone marrow cancer. Over the past 8 years, I have received 9 chemo regimens involving 18 different drugs, at least four of them twice. Three clinical trials. Total body irradiation and too many biopsies and scans of all types to count. Underwent an allogeneic haploidentical transplant in 2015 and now fighting chronic GvHD. I have learned the value of suffering and embrace it.

      However, with a difficult malignancy such as Myeloma, I would search for a clinical trial. Breakthroughs are not made unless current treatment regimens are challenged by new drugs or new combinations of existing drugs. You can find the available clinical trials here: https://clinicaltrials.gov/ct2/search

      29 days ago
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    Question: multiple myeloma