• Lindy's Avatar

    Lindy wrote on catalinawoman's wall

    Hope you have good support and best oncology team, HER2 has seen some good advances. I too was HER2 and the protocol was in my opinion tough, hope you are managing well.

    1 Comment
    • catalinawoman's Avatar
      catalinawoman

      Thank you for your post. Yes, I have very good support. My cancer is estrogen based therefore I am on estrogen blockers.

      6 months ago
  • catalinawoman's Avatar

    catalinawoman wrote on irenesf's wall

    My e-mail address was redacted from my original post. So, I'll try to leave it a different way.

    catalinawoman at aol dot com

  • catalinawoman's Avatar

    catalinawoman wrote on irenesf's wall

    Hi Irene,

    My name is Regina and I also live in Tucson. I am in year 5 of a 5 year medication protocol an bilateral mastetomy. I would love to meet someone local whom I can share my experiences with. Perhaps that is you.

    Please e-mail me at [email redacted].

    - Regina

  • catalinawoman's Avatar

    catalinawoman wrote on kate56's wall

    Hi Kate,

    My name is Regina. I was diagnosed with an invasive form of breast cancer in Nov, 2010. My journey has been complicated by infections. I never had chemo or radiation; I'm on a 5-year medication regimen.

    Would love to get to know others here in the Tucson area.

    Always, Regina

    2 Comments
    • kate56's Avatar
      kate56

      I had my sentinel node biopsy and lumpectomy on April 2. Tomorrow I get my simulation for rads. I will have my rad treatment at Orange Grove which is a drive for me but it will last only 4 weeks instead of the usual 6. They are not waiting for the result of the oncotype test as they think it unlikely I will need chemo....hope not! I have a lot of swelling and redness and heat under and around my breast, I am on an ibuprofen and tylenol regime this week which seems to work a bit better than vicodin. Think I will manage to work a full week if i get through tomorrow. Hope you are doing well, wondered why no chemo or rads?

      over 7 years ago
    • catalinawoman's Avatar
      catalinawoman

      I had a bilateral mastectomy. My cancerous lymph nodes were also removed. I was not a candidate for chemo or radiation and from what I've heard and seen, I am very glad. I take Arimidex; it is a 5-year regimen. I have a little over two and a half years left.

      I had to deal with infection after infection throughout my total of 7 surgeries for the mastectomy and reconstruction. I could not get rid of it. I was on antibiotics a bit over a year constantly.

      I am now dealing with lymphedema in my right upper arm. Also, the side effects of the Arimidex are awful - - - constant joint pain, weakening of my bones, difficulty walking, depression and more.

      This has all left me disabled. At 60 it was hard enough to do what needed to be done for me and my son but also holding down a job felt impossible especially because of almost daily aspiration of fluids from my breast area and after each subsequent surgery. Yesterday, May 1 was my first day on Medicare. Hooray - - - I hadn't had health insurance for two months therefore I was unable to see any docs and was terrified of another lymphedema related infection that would require hospitalization. I had prefilled my meds and hoarded as many as possible to get through that time period and it was successful.

      I live in Catalina and have my 16-year old son at home with me. My husband and I separated three years ago and we are now working on getting our divorce. I have raised a total of six children but only two of them are my children each of whom is in their late 30's.

      Please tell me a little about yourself.

      over 7 years ago
  • catalinawoman's Avatar

    catalinawoman wrote on Ebony's wall

    Hi - I'm new here. I live in Catalina. I see that you're in Tucson.