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    User: faithful2016

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    catmoy wrote on faithful2016's wall

    Hi Faithful,
    I was diagnosed with LMS in 2013, May. I'm currently NED ( no evidence of disease).
    I am glad you use the no kier " Faithful" because it tells me you have Faith. Faith gets me through.
    I had six rounds of chemo after a botched surgery to remove " fibroids," which turned out to be ULMS. I almost died because the surgeon cut my bladder and ureter and I became septic.
    A few tips for you: You are NOT a statistic, so don't let statistics scare you. Never shy from asking questions. Consult opinion from Sarcoma specialist. Keep faith. God bless you.
    I'm here for you.

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    catmoy wrote on TrixieD45's wall

    It will be three years in May that I was diagnosed. I'm still scared out of my mind sometimes because of the. Degree of evil of LMS. November was two years from my last chemo. I have permanent neurological damage and still fall sometimes. I live day to day. If you are well enough, try exercising. The endorphins will help. You are welcome to contact me. [email redacted]. You can do this. Enjoy every breath, raindrop, laugh.

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    User: TrixieD45

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    catmoy wrote on TrixieD45's wall

    Trixie,
    You are now on my prayer list. I was diagnosed in May 2013 with LMS. I was morcellated. I had six rounds of Gem/Tax. It was in my uterus. Docs said it was a benign fibroid. Wrong! The surgeon accidentally cut open my bladder and ureter, so I had a nephrostomy and peed in a bag.
    I'm doing OK. I'm NED ( no evidence of disease), thank God. I get a PET next week. I've learned a lot. I'm here for you. I live in the SF Bay Area.
    Do not read statistics and believe you are one. You are not!
    God bless you.

    1 Comment
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      TrixieD45

      Thank you catmoy! and much congrats on NED! I think the advice on not reading statistics is some of the best advice I've gotten so far :) God bless you!

      over 3 years ago
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