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    User: Bluefox

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    cbr2 wrote on Bluefox's wall

    Bluefox - so so sorry to read about your diagnosis. There is nothing in this world that could possibly prepare you for this. My husband was diagnosed about a year ago and we went through the same shock and disbelief. You will learn a lot as you could forward but never ever give up hope. Many people have responded well to Opdivo and there are other immunotherapy trials going on at Yale right now. I see that you live in Danbury CT - we live in Marlborough CT and have been down to find out about the trials at Yale. I think the most important thing is to find a cancer treatment center that inspires you with hope and offers the latest treatments and consults with other hospitals. Also - do not let the cancer rule your world. Easier said than done but try as hard as you can to live your life and take joy and peace wherever you find it along the way. Sending prayers and positive thoughts your way!!!

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      Bluefox

      Thank you! I didn't realize Yale was doing research too. I've been watching Memorial Sloan Kettering for their clinical trials. My oncologist is a fan of Columbia. Right now I just have to get through my first round of chemo Tuesday. Very short term goal.

      over 5 years ago
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      cbr2

      Best of luck tomorrow with the chemo. My husband tolerated the chemo he was on initially very well with minimal side effects. A few things we learned though - stay well hydrated (both before and a few days after) to move the toxins out of your system as quickly as possible. Also - my husband became somewhat constipated for a day or two after an infusion and now he quickly uses a stool softener to make sure things are moving out quickly. (I know - TMI - but I wanted to share this as it did make a difference for him).

      over 5 years ago
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      Bluefox

      Good info! Thanks! I had heard that I need to drink lots of water - thinking about downloading an app that my friend showed me today. As for the other - well, just thanks!! (LOL)

      over 5 years ago
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    cbr2 shared an experience

    Radiation (Whole brain radiation (10 sessions)): Multiple mets back to the brain. Side effects include loss of hair, skin burn, pervasive fatigue for several weeks and severe hearing loss (which does seem to be slowly resolving).

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    cbr2 shared an experience

    Drug or Chemo Therapy (Chemotherapy): 3 rounds of Taxotere and Ct Scan shows great improvement. Side effects are starting to add up (especially taste and appetite) but we are happy for some good news for a change.

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      cbr2

      He was only on it for a few months (maybe 5 or 6 treatments). But - we knew from blood tests that the liver mets was getting worse and worse so they did a scan and determined that it was not working. Good luck to you - hope that you are among the many would respond to this immunotherapy.

      over 5 years ago