We are sooooo similar! I had urothelial carcinoma in BOTH ureters and both renal pelvis! My surgeon at UCLA said my chances of bilateral cancer of ureters was one in two million! This is NOT the kind of notoriety I wanted! One kidney was saved from surgery, both ureters replaced w/small intestine. I had extensive metastasis six months after surgery. I was given 24 months to live......with chemo. I was treated with carboplatin and gemzar...both good drugs. I was accepted in a clinical trial for Sutent (biologic for renal cell carcinoma). I am still on the drug 4 years later! There are no guarantees but at this point, I've been in remission for 4 years! After completion of your chemo, you might want to ask your Dr. about Sutent. He/she can also contact Dr. Steve Wong at Clark Urology, UCLA (Los Angeles). Since we are both Lynch (I've also had uterine , colon cancers ), perhaps Sutent would help you. It is worth asking about. My Drs. still don't know why I went into remission. I know how hard it is to stay positive, especially after a prognosis such as ours but there is always hope....I am living proof of that! You go girl!!!! My prayers are with you!
Orchestra
