• cearnsha's Avatar

    cearnsha shared an experience

    Oh No (Cancer has spread/Metastasized): I got Oxaliplaten and Gemzar, 8 rounds. I developed allergy to the oxaliplaten, but could still have it. My cancer marker was dropping dramatically and my oncologist was very optimistic, then the chem stopped worked and a CT scan showed spread in some areas including some bone mets, although my primary tumor was apparently dying off. I got radiation for the bone mets and the radiation oncologist sounded very optimistic about getting rid of them, but I've been suffering a lot of pain in those areas. My regular oncologist doesn't want me to get any more chemo - he says there's nothing that would help me.

  • cearnsha's Avatar

    cearnsha shared an experience

    Oh No (Cancer has spread/Metastasized): I got Oxaliplaten and Gemzar, 8 rounds. I developed allergy to the oxaliplaten, but still could get it. My cancer marker was dropping dramatically and my oncologist was very optimistic, then the chem stopped worked and a CT scan showed spread in some areas including some bone mets, although my primary tumor was apparently dying off. I got radiation for the bone mets and the radiation oncologist sounded very optimistic about getting rid of them, but I've been suffering a lot of pain in those areas. My regular oncologist doesn't want me to get any more chemo - he says there's nothing that would help me.

  • cearnsha's Avatar

    cearnsha shared an experience

    Symptoms: Pain after radiation in May was controlled by Tramadol and Tylenol, then Tramadol wreaked havoc on my stomach and I quit it. Now I'm having trouble finding something else to manage the pain. I seem to have trouble with narcotics. Flector Patch (diclofenac) seems to help ome but not enough). Any ideas?

    1 Comment
    • YQM's Avatar
      YQM

      They just put my husband on Fentanyl patches (less side effects)... took awhile to get the right dose.

      almost 4 years ago
  • cearnsha's Avatar

    cearnsha wrote on darin's wall

    Hello, are you considering different treatment options? Pancreatic Cancer Action Network (pancan.org) is a great resource, and can put you in touch with people who've beaten pancreatic cancer. Best of luck!

  • cearnsha's Avatar

    cearnsha asked a questionPancreatic Cancer

    Radiation Side Effects

    • GregP_WN's Avatar
      GregP_WN

      Fatigue is a common side effect of radiation. I had 25 treatments to my neck. By the second week I had to go home and take a nap. Some burning may happen too, use some cream, the center will give you some or suggest some just ask them. Also, depending on where you get hit with the radiation you will have other side effects.

      almost 4 years ago
  • cearnsha's Avatar

    cearnsha asked a questionPancreatic Cancer

    Emotional Effects of Cancer

    • glam's Avatar
      glam

      It is not easy and for sure easier to say than to do, but I guess in my case faith in GOD first and in myself played the most important role.....For GOD nothing is impossible and I know how important it is to me and how committed I could get with treatments to make my part on this journey and win the battle....So when things get bad in my mind I pray, and I pray and I pray till my thoughts get better......I also write a dairy (not every day but I could say three or fous days a week), walk and play with my dogs and talk a lot with my doctors as they always can give me insights of other patients and help me with other perspectives......having a wonderful husband who is by my side throughout treatment and channels such as this one is also very helpful.......God bless you and never to give up......It is your life.....your history....

      almost 4 years ago
    • Clyde's Avatar
      Clyde

      Glam has some good advice. What I will add (not being overly religious, at least not in the same way) is that you can find a professional to speak too. There are cancer shrinks out there who can help, often with just a few visits. Its not a symbol of weakness to ask for help, its a symbol of strength. I'm going on my journey by myself, by choice and I don't really think I'm having that many issues. Its a disease, not a crime and I'm dealing with it. When I find a situation that I'm having trouble with, I have professional, objective people I can turn too. Don't feel alone.

      almost 4 years ago
    • Ydnar2xer's Avatar
      Ydnar2xer

      I turn to my friends and family and they've been terrific. If they didn't call me, I'd be proactive and call them, set lunch dates, etc. I didn't want to just sit there, feeling sorry for myself. I've had b/c twice, so I may be predisposed to it--and it may kill me eventually. But I keep thinking, "how would I want my friends & family to remember me?" Surely not as a victim! Oh, there are times I get down, but by reaching out to others, I've found a lot of strength. And until cancer "gets" me, I'm going to live my life the best way I can and make the most of it!

      almost 4 years ago