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    cellmem wrote on rlfuller7's wall

    One of the most daunting tasks for me was being diagnosed in 2001 with gleason 9 stage 3 and having no idea what to do. I spent a lot of time on the web and worrying a lot.I had external beam radiation in 2002 and a prostatectomy.Radiation damaged my ureters and I had urinary diversion sugery in 2009 ie stoma and urinary appliance.Personally I would avoid radiation if possible and move to hormone therapy.Radiation therapy techniqes have improved and the radiation is focused and directed to the tumor.I went to J Hopkins had scans and all the rest.No detectable cancer but PSA was 11. So the diagnosis was micro metastasis ie blood stream and lymph system.At some point in the future this would be expressed as a tumor.
    I came back home and continued with my local oncologist.The PSA had climbed to 130 by 2011.Did ketoconezal and taxotere neither treatment effective,still no detecable cancer but high PSA.I started Zytiga this year in September.I called my oncologist yesterday and PSA was 25. There are "super" hormone lowering meds out there that have been developed and FDA approved that seem to really work.Leading edge thinking now is to have a genome done and an analysis of the genetics of the type of PC specific to you and then determine the meds or treaments that would be most beneficial to your type of cancer.One thing I learned is that Prostate cancer is a complex disease.There are at least 20 genetically different types,thus the reason to find out the genetics before treatment.No one size fits all.Refer to [email redacted] are video conferences given by Dr. Charles Myers that can be subscribed to -free.Also visit the PAACT website.Hope this is useful,Mark

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    cellmem posted an update

    The present moment

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    cellmem shared an experience

    Side Effects (Skin changes): During treatment with chemo(taxotere) I had severe skin reaction around ostomy

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    cellmem shared an experience

    Radiation (External radiation (Instensity modulated))

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    cellmem shared an experience

    Drug or Chemo Therapy (Chemotherapy)

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      cellmem

      I failed taxotere and am doing zytiga

      about 4 years ago
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    cellmem shared an experience

    Procedure or Surgery (Laparoscopic radical prostatectomy)