• GregP_WN's Avatar

    GregP_WN wrote on Cgracie007's wall

    Welcome to WhatNext, we are sorry for your need to find us, but happy that we can help you. There are a lot of great people here that have already been through what you are facing and are willing to help you get through it too. If you have questions about anything just post them on the Questions Page. Others will chime in with their personal experiences.

    If you need help navigating the site, please contact me, we are happy to assist. We also have active social pages, you may wish to search those out also. Take some time and poke around the site, there is a world of information here that you will find. The more you dig, the more you will find.

    We have an opportunity for you to make your voice heard with our partner Rare Patient Voice (www.rarepatientvoice.com) to be invited to qualify for surveys and phone interviews for projects that apply to you and if you do qualify you will be compensated on a $100 per hour basis. There are pharma companies that would like to hear about your experiences with certain drugs or side effects. Your information might help develop the next generation of drugs.

    Rare Patient Voice will send you an email inviting you to join their panel. If you don't respond you will be added to their panel. Be assured your information is only shared with Rare Patient Voice and is treated with the highest degree of confidentiality. If at any time you want to opt-out of receiving invitations to projects you can do so immediately.

    If you say no you will not be added to the panel.

    Thank you for joining us, if you have questions please contact us.

    Greg_WN
    WhatNext Community Mgr./Social Media Mgr.
    5X Survivor

  • Bug's Avatar

    Bug wrote on Cgracie007's wall

    Hi, Cgracie007! I see you're new to the web site. You have found a great resource here. There are a lot of really wonderful people on this web site - very kind, helpful, and supportive. I hope you find as much support here as I have. I bet you will. Take care.

  • Cgracie007's Avatar

    Cgracie007 shared an experience

    Drug or Chemo Therapy (Chemotherapy): Mine caused diverticulitis and 3 severe intestinal infections. Other than that the normal side effects like fatigue, loss of taste, mouth sores, and similar type expected side effects I didn’t have. I continued to work during my treatment.

  • Cgracie007's Avatar

    Cgracie007 shared an experience

    Procedure or Surgery (Double Mastectomy): I actually thought it went a lot smoother than expected and less painful. Of everything I found this to be the easiest. But I do recommend Minimal activity even if you feel pretty good as it will lengthen the amount of time you have you drained in. Mine were in for over 3 weeks because I was doing to much.

  • Cgracie007's Avatar

    Cgracie007 started following

    User: GregP_WN

  • DaveWaz's Avatar

    DaveWaz wrote on Cgracie007's wall

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter