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    Chachi wrote on Jjourneying's wall

    Hey - how are you? I saw that you joined and have stage IV breast cancer. Just letting you know that you are not alone . I know what it feels like. Also have another friend that is stage IV and multiple people in the same place in my online inflammatory breast cancer group. Know that things are better and some drugs really do work to make you feel a lot better. Many in my group have gotten back to NED status too. Hope is still tjere

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    Question: AC-T or TC Chemo?

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    Chachi started following

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    Chachi wrote on Lily's wall

    Hi! Thanks for coming to this website! I joined after I was done with my ininitial treatment for breast cancer treatment (stage IV IBC breast cancer , ER+ PR+). It is a good place to come to to discuss and get ideas, feedback, hope, etc.

    I saw you were asking about a 2nd opinion - and this isn't your first rodeo / go around with this. And I am so sorry about that. I would consider asking for a second opinion - because there are newer drugs out there with different side effects... any drug you take likely will feel much better than the initial chemo you had and remember.
    I am also here to let you know that you can talk to me any time. I know what stage IV feels like emotionally. I am here for you and we can have virtual coffee together if you like

    4 Comments
    • Lily's Avatar
      Lily

      I am ER PR positive HER 2 Neg no one has even explained this to me.what test do u do for the brain????

      4 months ago
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      Chachi

      Before I answer below - I want you to know that my cancer went away - so I only now take an anti-estrogen pill - but I may find myself in your shoes again. So I try to keep up w new drugs etc. however There may be others that can answer better than I can.

      Faslodex is now used in combination with the newer drug ibrance in metastatic breast cancer cases. faslodex is an estrogen blocker ( I believe) and Ibrance stops your cancer from growing (stood cell division). Xgeva is meant to harden / protect bones. This is just my understanding of those drugs. I find it really useful to try to talk to an onc nurse to get more info or go and talk to your pharmacist - I have talked to several during my journey (and lucky to have a pharmacist daughter). And they give me the most accurate info re: the drugs and what to realistically expect as to how they can help and realistic possible side effects.
      I am sure others can jump into the conversation about these drugs - but they may really help you shrink the cancer growth and keep it in check.
      Have you had this onc before? Are you familiar at all with the onc nurses? Ask at the front desk there to find out who is a good one to talk to and get info. Also - there may be a cancer support group in your area - and someone in that group (coordinator) may be able to give you good contacts and probably be aware of someone who might be a really good communicating dr. You can switch to or get another opinion from. I find these support groups really useful to get great info and support.
      But taking these drugs in combo is pretty normal - and it works well for many. I do have a friend that is doing well on whay I think is this combo of drugs.

      4 months ago
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      Chachi

      And I don't know if you need to do a scan of your brain. I think I recently saw that ER PR breast tumors don't usually travel to the brain. But did you do a Petscan? That would light up any hotspots in your body. I still get petscans every 6months

      4 months ago
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    Chachi wrote on Brendue's wall

    Welcome! - I saw you mentioned something somewhere along the line about inflammatory breast cancer... I can help with that and answer a lot of questions if you like! Had stage IV IBC that came on quickly!!