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    Question: Fear of chemo

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    chaffinch wrote on TeriAbby's wall

    I am sorry. I remember the shock and I'm not sure that I'm out of shock 2.5 years into fighting my uterine leiomyosarcoma. I am glad that you are at Mayo to determine the exact type of sarcoma that you have, it is imperative that you have an exact diagnosis in order to treat it. Once diagnosed, please go to acor.org to join a listserve of patients with your exact type of cancer. The acor.org listserves are divided into exact cancer types where patients share treatements, side effects, doctors, etc. specific to their cancer. This WhatNext site is great for comraderie and information to cancer in general, I'm not dismissing it in the least. It is just that you also need information specific to your exact type of treatment that is found on acor.org. I imagine that you, like me, will have to travel for treatments because sarcomas are a rare cancer that must be treated at a sarcoma center. acor.org lists sarcoma centers. I am preparing you for the mind-set that you may have to travel for treatment (not just for the initial diagnosis). Please let us know your diagnosis. Probably Mayo will test your tumors for genetic deviations in search of targeted chemotherapies that are designed to work on your specific dna mutation. Also, they will probably test your tumor to see if it is hormone positive because a hormone inhibitor may be prescribed to help inhibit tumor growth. Pls let us know your diagnosis. Ask your doctors all your questions then ask them again and again until you understand all you need to know. Until then, take care.