@Carool
omg no worries please never be sorry i so appreciate the time anyone her take to offer any suggestions. i just wanted or hoped to be clearer in my asking the question,as sometimes my mind is working feverishly while typing out these questions! THANK YOU
My Goodwill
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channing2623 shared an experience
Oh No
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channing2623 shared an experience
Side Effects
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channing2623 asked a questionBreast Cancer
any insight would be wonderful
6 answers-
channing2623
3 months ago -
Carool
3 months ago@channing2623 Thank you! Re “no worries” - I don’t do “no worries”! LOL. And you were clear, but I am in a hurry to read something and sometimes miss the specifics.
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cak61
3 months agoHere is my experience. Stage 1 breast cancer at 47. A year-and-a-half on tamoxifen with almost no side effects. First oncologist recommended oophorectomy, second oncologist and gynecologist felt tamoxifen was addressing the estrogen.
Developed a growth in my uterus, so rather than biopsy and monitoring every 6 months I opted for complete hysterectomy (uterine cancer is in my imediate family). Both doctors agreed. At that point switch to an AI. The hot flashes were beyond horrendous. Some joint pain. And was diagnosed with osteopeenia. After 3 years on AI, I had all I could take, went to the doctor ready to quit the medication, he suggested going back to tamoxifen since I had very little trouble with it. Still had hot flashes but they were much more tolerable. Was on tamoxifen for another two and a half years when my oncologist retired and the new one said I was on it long enough.
Still having hot flashes 8 years later but they are now extremely mild. And lots of joint pain but not sure that's caused from the medication.
A lot of women have to try different AI's, and do better on one over another.
Best of luck to you.
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channing2623 started following
Question: any insight would be wonderful
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channing2623 started following
Question: Lumpectomy or mastectomy?
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channing2623 asked a questionBreast Cancer
FOOT PAIN AND TAMOXIFEN??
12 answers-
channing2623
3 months agoThanks as always for the insight and information.
i’ve tried all over the counter nsaids and even a prescription for ibuprofen. I’m not calling this bone pain, i’m sure it’s joint pain. not sure of what to do about it and i GUESS im not a believer that OA could just show up in these places all at once.
i’ll discuss with the dr. because i’m not so sure i’m even remotely comfortable switching to an AI at this point. I will come up with a plan i hope. i already have a podiatrist on “retainer”(lola) due to morton’s neuroma and already have inserts so i’m good there. so i’ll pay him a visit too again.
thanks again all for suggestions.
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CASSIEME1
3 months agothat's all well and good but my pain started 2 days after my first chemo, my onc halfed my dosage. than I started m eon Ais my pain came with a vengeance I went on 3 different meds. after the 5 years of AIs he said he want to do 10 which was 5 more years I told him no way. this was for a stage 1 I really believe that he was too aggressive .I now have osteoarthritis all over my body. I hurt every day. I have at least 3 days a week where I am awaken from my sleep due to the pain. I have had multiple rounds of physical therapy. channing2623 yes it can I am a living witness to that. I would not wish cancer, treatments and side effects on anyone in this world. I always pray that god will cure this dreadful disease without all the problems. I know my anguish and pain my heart hurts fro the children at St. Jude.
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