• Chemobrain35's Avatar

    Chemobrain35 posted an update

    I have been away from here for awhile :( I get my sixth Doxil treatment on Friday. This drug it kicking my butt!!! I am tired all the time and really don't like doing anything. This time of year is so busy and with three kids I have much to do! Also my four year old nephew needs his booster shots and I have to stay away from him for a whole month. He is so sad about that and doesn't why. Not a good week for me.

  • Chemobrain35's Avatar

    Chemobrain35 started following

    User: voros

  • Chemobrain35's Avatar

    Chemobrain35 asked a questionOvarian and Fallopian Tube Cancer

    recurrance

    8 answers
    • derbygirl's Avatar
      derbygirl

      Try not to panic.The CA-125 is only one test and has a known risk of false positives and negatives. Wait until your doctor does further testing to find out if there really is a recurrence of the cancer. I would hold off telling your children until you know something more definite. There is no need to worry them at this point until you know for sure. You could say something to your oldest though because at 18 years old, they can be a huge help with your younger kids. Just when you tell your oldest, be honest and say the blood work came back elevated and the doctor is going to take further steps to find out why. Take a deep breath and try your best to relax and do what I do and that is to worry when the doctor tells me there is something to worry about. Until that time, let everything in the hands of your medical team and a higher power. Take care

      over 4 years ago
    • BoiseB's Avatar
      BoiseB

      Your Dr. should have explained all this to you. Also she/he should have ordered follow-up care. I know it is sometimes hard to get any information from your Dr. Sometimes just the the threat of a second opinion gets results if not get a second opinion.

      over 4 years ago
    • ROSEMARY's Avatar
      ROSEMARY

      MOST WOMEN DO RECUR WITH OVARIAN CANCER WITHIN THE FIRST 2 YEARS. I AM IN A DIFFERANT CHEMO NOW AS I RECURRED ALSO. OVARIAN CANCER IS KNOWN TO BE A CHRONIC CANCER AND WILL BE TREATED AS IT RECURS. IT WILL MEAN A SHORTER LIFE THAN IF NO RECURRANCES HAPPENED, BUT THERE ARE MANY CHEMICALS FOR YOUR DOCTOR TO CHOOSE FROM. I WILL BE THINKING OF YOU. EVERYON I HAVE TALKED TO HAVE SAID THE FIRST RECURRANCE IS THE HARDEST. I KNOW IT HAS BEEN HARD FOR ME - BUT HANG IN THERE.

      over 4 years ago
  • Chemobrain35's Avatar

    Chemobrain35 shared an experience

    Oh No (Cancer is back/Recurred ): well i had my first three month check up today and my ca-125 is elevated. It was 20 in march and now it is 2000!!!! I guess I failed my treatment. more blood work tomorrow and scans on Friday. I am really bummed because I thought I bet it :( I was told during treatment that I didn't want a recurrence in the first year because it wouldn't be a good sign and I have a very large jump . very scared right now!!!

    2 Comments
    • c25862's Avatar
      c25862

      I had the same thing happen to me so I know how you feel. I'm so sorry that this has happened to you. You will be in my prayers. If you need advice or just want to vent I'm here for you as well as the whole community.

      over 4 years ago
    • mommybeatscanc's Avatar
      mommybeatscanc

      Hang in there. One day at a time and be strong. You fought once you can fight again. Chemo ladies are tough gals! Any news on your scan? Sending thoughts and prayers. -Trish

      about 4 years ago
  • Chemobrain35's Avatar

    Chemobrain35 shared a photo

    Wall_image

    My first relay bag of the year. This one is for my Grandpa who has kidney cancer. Only 12 more to do :)

    2 Comments
    • GregP_WN's Avatar
      GregP_WN

      I love the luminary bags. We had almost 2000 on our track this year. It's such a touching thing to see how some people decorate them. This one is nice, he should like it.

      over 4 years ago
    • Chemobrain35's Avatar
      Chemobrain35

      The theme for our relay this year is superheroes and villains

      over 4 years ago
  • Chemobrain35's Avatar

    Chemobrain35 posted an update

    I finally get to go back to work on Tuesday!!! It has almost been a year and I am nervous as heck.

    4 Comments
    • carm's Avatar
      carm

      CONGRATULATIONS!!!!

      over 4 years ago
    • GregP_WN's Avatar
      GregP_WN

      Little steps are the best ones! Glad your able to get with it.

      over 4 years ago
    • c25862's Avatar
      c25862

      I to was nervous when I went back to work the first time. I was gone for 9 months. I thought I forgot alot but I didn't and once I was there a couple of days I fell right back into my routine at work. You will do great I know you will :) congratulations on everything

      over 4 years ago