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    cher598 posted an update

    I wrote aan answer on here--its on question page

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    Question: icecap

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    cher598 asked a questionBreast Cancer

    icecap

    6 answers
    • ddkk3's Avatar
      ddkk3

      I must say, I was a bit offended by the choice of that word humiliation. That's probably why my reaction was a little harsh. I think I need to look for the clip from that episode of The Doctors! I'll check youtube.

      Anyway, I agree with the others. Everyone should feel comfortable enough on here to ask any question they are thinking of so don't let that deter you...just in case!

      Thank you for explaining where your question came from.

      about 4 years ago
    • CAS1's Avatar
      CAS1

      I think Fast dog said it best: "legitimate question".

      At the same time I think that we all need to be protected from spammers asking foolish questions or those who have not actually been diagnosed and are just fishing around and not being truthful with their DX. Or kids asking illegitimate questions. We do need that security of a safe and genuine group.

      For many women they are humiliated so regardless of our personal feelings we need to respect this feeling for others. I can assure you I know this feeling well. Having LC and having the stigma of " You must have brought it on yourself" attitude.

      There is stigma for any of the HPV cancers like people brought it themselves..awful stigma and totally not true.

      I know I felt much sicker once I lost my hair so it does have a profound effect on anyone of us. And it was so hard because I never ever let my 12 year old daughter see me without hair. When I got really bad I sent her to my in laws for three weeks.

      I have known about this cap for a long time. Since I post data I hope not to shoot a messenger either. I will try and be careful too.

      But this is a strange emotional World this cancer journey.

      about 4 years ago
    • cher598's Avatar
      cher598

      Thank you for your meaniful answers.So glad you know I did not mean any harm, + I so appreciate that--I was very upset. Now I feel better.I will continue to use this site, hoping to phrase my words better.(hoping I can help} ty again

      about 4 years ago
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    cher598 started following

    Question: icecap

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    cher598 asked a questionBreast Cancer

    icecap

    27 answers
    • cher598's Avatar
      cher598

      I take back this question, but could not delete it --I wrote a response a long time ago that I was totally misunderstood, but I cannot find my other response from then. So sorry ev one seemed upset, + I wish u all the best. I got the info from "the Doctor"s tv show.

      almost 4 years ago
    • Ladykarla's Avatar
      Ladykarla

      Cher, I just saw your second post about your question being misunderstood. Being a member of this site for awhile and being familiar with these wonderful people who posted answers to your question, let me say that no one, truly no one, is upset or mad at you. They love you as a fellow human being with cancer and they are concerned for you. They are trying to help you. Most of the people who gave you their opinions have helped me and made my life so much easier. Your question turned out to be valuable because many of these answers helped me in other ways. The outpouring you got from your question turned out to be a blessing. Also, look how many people cared enough about you to respond. Isn't it wonderful? You keep asking questions and we will keep answering with care for you in our hearts.

      almost 4 years ago
    • Ddancer's Avatar
      Ddancer

      I did it. Of course I love life more than my hair, but it was very long, very beautiful and part of who I am, a dancer. I just finished my last chemo treatment and swore I would never do it, but the cancer was too invassive and aggressive. Tears don't even come close to the anguish.

      I did the Advance Cold Cap treatment since Feb. My hair has thinnned quite a bit, but I still have hair on my head and a little pony tail. I saved my original hair. I was hoping to have more but don't. Five months ago I could not even talk about it and now here I am. I am not humiliated, or embarressed just sad to find hair all over the house. I just started loosing my eye brows/lashes last month, so maybe that slowed that down too. I am not going to worry about cancer in my skull. I am confident that my doctors took care of me. Surgery is next month and the tumors have shrunk by 70% already so I will be alright. A lumpectomy is the plan. I will let everyone know though if I get a different story.

      almost 4 years ago