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    cheypeggy wrote on Olneygirl's wall

    Hello! I saw your profile, and realized our diagnosis is very similar. The biggest difference is, this month is my 5 year anniversary of completing my surgery and chemotherapy. In January of 2012, I started my radiation therapy. Many times through my journey, I wished that I had someone who knew what I was going through, that I could talk to, ask questions, get another perspective from. It was all so frightening, and it happened so fast that I just "followed Drs orders". And while my doctors were good, for the most part, it wasn't until afterwards that I learned many questions and tips that would have made a difference. Anyway, I'm here if you ever need someone. Know that I am praying for you, and I am one example that proves there is an end to the treatments, and there are positive outcomes. I had my share of problems, and had more than a few "rare" side effects, but in another 45 days, I will be considered CURED of my breast cancer, because I have survived for 5 years with no recurrence! Good luck and hang in there.
    Peggy

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    User: Olneygirl

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    cheypeggy shared an experience

    Other Care (Adjuvant chemotherapy.): I have been taking an oral chemotherapy drug since the completion of the iv infusions. I take Letrazol, and its recommended that I take it for the rest of my life. It is a hormone blocker which will hopefully prevent spreading or recurring tumors. Side affects are loss of bone density, thinning of hair, and in some cases (including mine) stomach problems (inflammation of intestines, ulcers, gallstones)

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    cheypeggy shared an experience

    Procedure or Surgery (Implant chemotherapy port): As mentioned, the port was placed incorrectly, causing pressure against jugular vein resulting I a blood clot. The Doctor decided to do the removal in his office. He had a student do the procedure. She was obviously not expecting it, and when she asked for his guidance he told her "you're a smart girl. Figure it out! Not very reassuring. I had small pieces of wire that worked their way out through my skin for several months afterward. When it was time to remove the drain tube after mastectomy, he told me to take a deep breathe, then yanked on the tube. Very painful and the tube didn't budge. He pulled very hard the second time, and I felt tissue ripping. Blood sprayed everywhere when the tube came out, and there was a good sized piece of tissue attached to it. Dr's comment: " loops. I'm sorry. I guess I had a few sutures in there that I forgot about. Hope that didn't hurt too bad. Would you like some Tylenol? I think I'd better put in a few sutures to fix up that hole we just made."$

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    • Deni56's Avatar
      Deni56

      I had the same thing happen month and a half after implant...3.5 cm Blood Clot - worse experience of my cancer journey...spent 7 days in the ICU with 2 different blood thinners then was sent home with lovenox injections 2 times per day for 9 months

      9 months ago
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    cheypeggy shared an experience

    Drug or Chemo Therapy (Chemotherapy): I received Adriamycin, taxol, cytoxin. Had 3 courses, then my oncologist left his practice (without notifying patients). Assigned to a new oncologist who accelerated my treatments. Instead of once every month, I had chemo treatment every other week for 8 additional weeks. Followed by neulasta injection.

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    cheypeggy shared an experience

    Oh No