• chiefomni's Avatar

    chiefomni wrote on SurvivorSusan's wall

    I am an esophageal cancer stage III survivor of 20 years. I have been through Chemo, radiation and surgery. We created the Esophageal Cancer Education Foundation (ECEF) www.fightec.org in part to help patients with their journey through this disease.

    We have co-authored a book called 100 Questions and Answers about Esophageal Cancer published by Jones and Bartlett and you can get it at any book store.

    We have also published a book called Esophagectomy Post Surgical Guide Questions & Answers published by Authorhouse that you can get at any bookstore or on our web site www.fightec.org

    We have support groups that meet by conference call on a monthly basis. Patients calling in with quality of life questions and hearing how other patients have handled a specific issue. Calls are in the evening at 8:00PM (EDT).We have two Thoracic surgeons that attend each meeting Go to https://fightec.org/services/ get more information. You can send me an email at [email redacted].

    We also have a conference call support group for recurrence and stage IV patients. This group meets on a monthly basis and we have a medical oncologist that joins each call. If you are interested please send an email to [email redacted]

    We also have a 24hour hotline to help with quality of life questions as well. The number is on our web sitehttps://fightec.org/services/

    We have a You Tube Channel https://www.youtube.com/channel/UCDkh7_H9BOnNASdmG4pdF0g . If you subscribe to this channel, you will receive notice each time we add a video about esophageal cancer to it.

    We look forward to hearing from you
    Take care and stay safe.

    Bart Frazzitta
    President

    1 Comment
    • SurvivorSusan's Avatar
      SurvivorSusan

      Thank you. I wish I had known more when I was first diagnosed in 2019. I originally had chemo & radiation prior to surgery (esophagectomy with gastric pull-up ).
      A few days following the surgery there were new pathology results that showed microscopic cancer cells that were in the margin. Too late to go back in surgery to take more tissue out. So I was watched and tested for 6 months to see if any cancer reappeared. And my fears became a reality; there was a tumor growing again.
      My options were either two difficult surgeries or try Proton radiation and chemotherapy. I opted for trying the easy route and completed a 5 week course July 31, 2020.
      I actually have a CT scheduled next week to see how effective the treatments this year were. Crossing fingers this is the magic answer.

      2 months ago
  • chiefomni's Avatar

    chiefomni wrote on Kymmy's wall

    I am an esophageal cancer stage III survivor of 20 years. I have been through Chemo, radiation and surgery. We created the Esophageal Cancer Education Foundation (ECEF) www.fightec.org in part to help patients with their journey through this disease.

    We have co-authored a book called 100 Questions and Answers about Esophageal Cancer published by Jones and Bartlett and you can get it at any book store.

    We have also published a book called Esophagectomy Post Surgical Guide Questions & Answers published by Authorhouse that you can get at any bookstore or on our web site www.fightec.org

    We have support groups that meet by conference call on a monthly basis. Patients calling in with quality of life questions and hearing how other patients have handled a specific issue. Calls are in the evening at 8:00PM (EDT).We have two Thoracic surgeons that attend each meeting Go to https://fightec.org/services/ get more information. You can send me an email at [email redacted].

    We also have a conference call support group for recurrence and stage IV patients. This group meets on a monthly basis and we have a medical oncologist that joins each call. If you are interested please send an email to [email redacted]

    We also have a 24hour hotline to help with quality of life questions as well. The number is on our web sitehttps://fightec.org/services/

    We have a You Tube Channel https://www.youtube.com/channel/UCDkh7_H9BOnNASdmG4pdF0g . If you subscribe to this channel, you will receive notice each time we add a video about esophageal cancer to it.

    We look forward to hearing from you

    Take care and stay safe.

    Bart Frazzitta
    President

  • chiefomni's Avatar

    chiefomni wrote on CancerNews's wall

    I am an esophageal cancer stage III survivor of 20 years. I have been through Chemo, radiation and surgery. We created the Esophageal Cancer Education Foundation (ECEF) www.fightec.org in part to help patients with their journey through this disease.

    We have co-authored a book called 100 Questions and Answers about Esophageal Cancer published by Jones and Bartlett and you can get it at any book store.

    We have also published a book called Esophagectomy Post Surgical Guide Questions & Answers published by Authorhouse that you can get at any bookstore or on our web site www.fightec.org

    We have support groups that meet by conference call on a monthly basis. Patients calling in with quality of life questions and hearing how other patients have handled a specific issue. Calls are in the evening at 8:00PM (EDT).We have two Thoracic surgeons that attend each meeting Go to https://fightec.org/services/ get more information. You can send me an email at [email redacted].

    We also have a conference call support group for recurrence and stage IV patients. This group meets on a monthly basis and we have a medical oncologist that joins each call. If you are interested please send an email to [email redacted]

    We also have a 24hour hotline to help with quality of life questions as well. The number is on our web sitehttps://fightec.org/services/
    We have a You Tube Channel https://www.youtube.com/channel/UCDkh7_H9BOnNASdmG4pdF0g . If you subscribe to this channel, you will receive notice each time we add a video about esophageal cancer to it.

    We look forward to hearing from you

    Take care and stay safe.

    Bart Frazzitta
    President

  • chiefomni's Avatar

    chiefomni wrote on Jimw396's wall

    I am an esophageal cancer stage III survivor of 20 years. We created the Esophageal Cancer Education Foundation www.fightec.org in part to help patients with their journey through this disease.
    We have co-authored a book called 100 Questions and Answers about Esophageal Cancer published by Jones and Bartlett and you can get at any book store.
    We have also published a book called Esophagectomy Post Surgical Guide Questions & Answers published by Authorhouse that you can get at any bookstore or on our web site www.fightec.org
    We have support groups that meet by conference call on a monthly basis. Patients calling in with quality of life questions and hearing how other patients have handled a specific issue. Go to www.fightec.org and click on services to get more information.
    We also have a conference call support group for recurrence patients. This group meets on a monthly basis and we have a medical oncologist that joins the call. If you are interested please send an email to [email redacted]
    We also have a 24hour hotline to help with quality of life questions as well.
    We have a You Tube Channel https://www.youtube.com/channel/UCDkh7_H9BOnNASdmG4pdF0g . If you subscribe to this channel, you will receive notice each time we add a video about esophageal cancer to it.
    Good luck
    Bart

  • chiefomni's Avatar

    chiefomni wrote on Jackusma57's wall

    The Esophageal Cancer Education Foundation www.fightec.org has conference call support group for patients with recurrences or stage IV conditions. Please go to our web site and click JOIN (no cost involved) and we will get back to you with the phone number and access code.

    Take care

    Bart Frazzitta
    President
    [phone number redacted]

  • chiefomni's Avatar

    chiefomni wrote on ArtbyDeano's wall

    I am an esophageal cancer stage III survivor of 19 years. We created the Esophageal Cancer Education Foundation www.fightec.org in part to help patients with their journey through this disease.

    We have co-authored a book called 100 Questions and Answers about Esophageal Cancer published by Jones and Bartlett and you can get at any book store.

    We have also published a book called Esophagectomy Post Surgical Guide Questions & Answers published by Authorhouse that you can get at any bookstore or on our web site www.fightec.org

    We have support groups that meet by conference call on a monthly basis. Patients calling in with quality of life questions and hearing how other patients have handled a specific issue.. Go to www.fightec.org and click on services to get more information.

    We also have a conference call support group for recurrence patients. This group meets on a monthly basis and we have a medical oncologist that joins the call. If you are interested please send an email to [email redacted]

    We also have a 24 hour hotline to help with quality of life questions as well. We have a You Tube Channel https://www.youtube.com/channel/UCDkh7_H9BOnNASdmG4pdF0g . If you subscribe to this channel, you will receive notice each time we add a video about esophageal cancer to it.

    Good luck
    Bart