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    Decision Point (Single or double mastectomy? )

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    PaulineJ wrote on chinuk70's wall

    I had 2 surgeries without even questioned if I wanted that.The surgeon took the lump out and about 2 weeks after I had the 6 lymp noyds taken out.It all happened in a month than oral chemo and radiation started .Then started apps with a oncologist.

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    Procedure or Surgery (MRI guided biopsy)

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    chinuk70 asked a questionHodgkin Disease

    Tamoxifen- yes or no?

    7 answers
    • Carool's Avatar
      Carool

      Bengal, I see why what I said is contradictory. I meant that I felt fine on Tamoxifen. I was on it for maybe four years when I learned my fibroids were growing (all of this was sixteen or so years ago). At that time I was in an ovarian cancer study at my hospital (MSKCC) and was having quarterly vaginal ultrasounds to see if I had ovarian cancer symptoms; I did not have ovarian cancer, but the growth of my fibroids was detected during one of those ultrasounds. The gynecological oncologist at MSKCC told me I had no signs of a uterine sarcoma, and the hysterectomy would be elective. Nevertheless, I wanted one. It was done laparoscopically. Everything was benign and the operation was pretty easy. Afterwards, the gynecological oncologist said that Tamoxifen had been suspected of causing uterine sarcomas — although that was rare — and he agreed that it was wise of me to have had the hysterectomy. I think that, back then, this suspicion was just becoming known to doctors. When my oncologist suggested Tamoxifen, she mentioned nothing about uterine sarcomas.

      Sorry for long comment. Now I probably would try to take another breast cancer preventative, if possible. Back then, my main desire was to prevent more breast cancer.

      10 months ago
    • Dawsonsmom's Avatar
      Dawsonsmom

      It was recommended that I take an AI but after researching potential side effects and talking w women who are taking it, I decided to gamble w my chances of recurrence. A good friend took Tamoxifen and reports no significant side effects. However, her husband reports differently....states she was difficult to live with bc of irritability and was glad when she completed her 5 yrs.

      10 months ago
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      chinuk70

      Thanks everyone- definitely a hard choice. Lots to think about-

      10 months ago
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