• chinuk70's Avatar

    chinuk70 asked a questionHodgkin Disease

    Tamoxifen- yes or no?

    7 answers
    • Carool's Avatar
      Carool

      Bengal, I see why what I said is contradictory. I meant that I felt fine on Tamoxifen. I was on it for maybe four years when I learned my fibroids were growing (all of this was sixteen or so years ago). At that time I was in an ovarian cancer study at my hospital (MSKCC) and was having quarterly vaginal ultrasounds to see if I had ovarian cancer symptoms; I did not have ovarian cancer, but the growth of my fibroids was detected during one of those ultrasounds. The gynecological oncologist at MSKCC told me I had no signs of a uterine sarcoma, and the hysterectomy would be elective. Nevertheless, I wanted one. It was done laparoscopically. Everything was benign and the operation was pretty easy. Afterwards, the gynecological oncologist said that Tamoxifen had been suspected of causing uterine sarcomas — although that was rare — and he agreed that it was wise of me to have had the hysterectomy. I think that, back then, this suspicion was just becoming known to doctors. When my oncologist suggested Tamoxifen, she mentioned nothing about uterine sarcomas.

      Sorry for long comment. Now I probably would try to take another breast cancer preventative, if possible. Back then, my main desire was to prevent more breast cancer.

      8 months ago
    • Dawsonsmom's Avatar
      Dawsonsmom

      It was recommended that I take an AI but after researching potential side effects and talking w women who are taking it, I decided to gamble w my chances of recurrence. A good friend took Tamoxifen and reports no significant side effects. However, her husband reports differently....states she was difficult to live with bc of irritability and was glad when she completed her 5 yrs.

      8 months ago
    • chinuk70's Avatar
      chinuk70

      Thanks everyone- definitely a hard choice. Lots to think about-

      8 months ago
  • chinuk70's Avatar

    chinuk70 started following

  • chinuk70's Avatar

    chinuk70 shared an experience

    Side Effects (Breast tenderness or growth): More Health Issues due to past treatment. Radial scaring in the breast indication of much higher risk of breast cancer in already high risk people. Surgical removal of area.

  • chinuk70's Avatar

    chinuk70 shared an experience

    Side Effects (New Health issues caused by Prior Treatment): Lost Thyroid due to prior radiation treatment. Mass on both sides extending below collar bone.

  • chinuk70's Avatar

    chinuk70 started following

  • chinuk70's Avatar

    chinuk70 started following

    User: GregP_WN