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    christinapitts wrote on Peroll's wall

    I would love to share my information with you [email redacted] and please also have your wife contact me I need all the support I can. I have alot of coworker support but no family. They told my husband Friday he might have 2 months his is still taking chemo pill zelboraf but he looks so strong and healthy. I told him anything is possible and we have a 6 year old . Thaks so much christina

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    christinapitts asked a questionSkin Cancer - Melanoma

    my husband has stage IV melanoma. He is BRAF positive and taing Zelboraf chemo pill this is the third month. How long does he have?

    10 answers
    • Terri's Avatar
      Terri

      Not to be negative, but my oncologist basically told me it is a end stage drug. I don't know if that is true because I have heard people being on it for years and doing well. he told me 9 months max and then it will probably stop working and you will have a lot more melanoma tumors. I was given 3 months to live in 2009. I am still here. So who knows?

      about 4 years ago
    • StrongSteph's Avatar
      StrongSteph

      Hello Christina, I am reading your question with a heavy heart. I am sad that your family is going through this... I want to share my story with you. In fall of 2010 I was diagnosed with stage IV melanoma. I had a large tumor under my left arm, which grew to 16 cm in size! I had lesions in my lungs, on my bones, and a "subcutaneous" tumor above my belly button. By the time I got into the hospital I was bad off! I found a speciality clinic in Santa Monica that, along with the John Wayne Cancer Center, saved my life. It is a horrible diagnosis and terrifying, but I am here, NED (No Evidence of Disease!) If you have any questions about my treatment and how I made it through, please contact me: you can call me, email me, ([email redacted]) or fb me.... Take Care!! There are those of us who have fought a stage IV diagnosis!

      about 4 years ago
    • JackieK's Avatar
      JackieK

      I have stage IV melanoma and have taken zelboraf as a treatment for two months and the good news is that it saved my life and that you can use it over and over again. Talk to his doctor about when to take zelboraf and when to come off of it before the resistance to it builds up in his body.

      almost 3 years ago
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    christinapitts posted an update

    This is killing me. I was in the hospital last week turns out it was just stress. I have a 6 year old daughter and a job and no one to help me, We cant get hospice as long as hes on chemo. His parents wont even come out here. My coworkers are the only people who have pulled me thru but i dont know how much more i can take. He is irriational and drinks heavily with his pain meds and chemo. please help

    1 Comment
    • KarenG_WN's Avatar
      KarenG_WN

      Have you contacted the American Cancer Society? They might have some suggestions. Their phone number is to the right and at the bottom of this page. Also, consider speaking with social workers or nurses at the hospital. Also http://www.robcares.com is a terrific caregiver blog. Please let us know what we you need and how we might be able to help. We'll do what we can.

      over 4 years ago
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    christinapitts shared an experience

    Other Care

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    christinapitts shared an experience

    Decision Point (how long does this go on with stage IV nad 15 brain mets)