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    Decision Point: The UNM Cancer Urologist did a Cystoscopy and did not see any tumors in the bladder as the other Cancer Urologist had seen. The UNM Cancer Urologist saw three red spots along the bladder wall, and said this is "inflammation" from the previous BCGs. So, here we had two opinions. We decided to follow with the UNM Cancer Urologist's recommendation for more BCG, but to be done at the UNM Ca Ctr, which my husband had done. No Mitomycin was included in the BCG. The treatment was very different that the first 6 treatments. The three treatments took 6 hours total, to order the BCG from the Pharmacy after a urine test. After starting the BCG, my husband was turned on one side for l/2 hr, then a half hour on the other side, the next 1/2 hr on his back, and finally the last 1/2 hr was on his stomach which was a very difficult position for my husband. On the first of 3 treatments, my husband could not tolerate the last 1/2 hr. Same thing on the 2nd and last treatments. He would tremble all over and was in excruciating pain in having a feeling of wanting to void. After the last treatment, my husband developed l02.4 temp and I took him to the hospital where they kept him overnight and released him at 6 p.m. the next day. The Urology Resident stated that my husband would no longer have BCG. And, that because of his age, he would not be a candidate for removel of his bladder as we were told a couple of months past. The rationale was that because of his age, and that some patients do not recover from bladder removal. This brings us to today April 23, 2011 and we will see the Pulm Oncologist at the UNM Ca Ctr on Thursday awaiting results of needle biopsy to the lung.

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    Other Care (Several small nodules were identified in June 2011, but too small to be diagnosed. ): A PET scan was later done, and the doctors are concerned tht the nodule is metastatic to the bladder cancer. There are several nodules in the lung, but only one had doubled in size since January 2012 up to 1.4 cm. A needle biopsy was done a week ago, and we will get results this coming Thursday.

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    Side Effects (Bladder problems): My husband could not hold his urine. He started using Depends which were a great help, he still uses Depends. We consulted with a cancer doctor at UNM Cancer Center for a second opinion. He agreed that my husband was getting the proper treatment. As earlier stated, he developed high temp with shaking chills. Tylenol took care of the high temp. After these 6 treatments, the doctor did a cystoscopy in the office and reported that the tumors were back and he was very alarmed. He said one was the size of a thumb. He said he did not expect the tumors to come back so soon, because it had only been about a month since the last BCG treatment. He referred us to the UNM Cancer Center in Albuquerque, where we continue to see an Oncology Surgeon.

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    Drug or Chemo Therapy (BCG with a chemotherapy drug Mitomycin for 6 Tuesdays in a row): The BCG with Mitomycin was inserted and my husband was able to go home after about 25 minutes. He had to hold his urine for two hours which was not easy to do He had severe burning upon the urine trickling out. The remaining 5 treatments became more and more painful upon urinating or bladder leaking. My husband had difficulty holding his urine. We started using chair and bed pads, and I had to wash clothes often because he leaked through. We started noticing that he spiked a temperature up to 101 degrees. I gave him a Tylenol and the temp returned to normal.

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    Procedure or Surgery (cystoscopy. Three tumors identified. Cauliflower shaped.): My husband was referred to a Urology surgeon after he got out of the hospital for double pneumonia. The doctor offered to do a cystoscopy while we there there in our first appointment. My husband daughter (a nurse) came along. We were told it was agressive, papillary, carcinoma, agressive. After this, a transurethral resection of the bladder was done under general anesthesia. Three tumors were removed.

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    Oh No: While at the emergency room for pneumonia, the ER doctor said you have double pneumonia, constipation and you have bladder cancer that will not be taken care of during this hospitalization. Then he walked out! It was an "oh no" moment, very unexpectedly and very bed side mannor.