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    CJhouse wrote on Sylvianne's wall

    Hi Sylvianne, I have been recently diagnosed with Thymus cancer. From what I have learned it is ver reare. Hopefuly you and I can share some of these experiences. It sounds as if this was a complete shock fo you. Can I ask why you are not being treated? One of my tumors is the size of a golf ball and I am heading to a different hospital to see what they can do. Also, I am doing chemo. Please write me and let me know how you are doing. Thanks carol

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    CJhouse asked a questionThymus Cancer

    does anyone know about Thymus Cancer. I have this tye but I have not been told what stage it is. How do I learn the stage I have?

    5 answers
    • KendallHHC's Avatar
      KendallHHC

      I had Hodgkin's that is a cancer of the lymphatic system, which includes the thymus. The tumor originated on my thymus and I had to have it removed (not a big deal b/c we don't need that gland for much when we're older - it's more important for children and growth). As drummerboy said, they should run more tests. A full PET scan to see if they can find cancer anywhere else and likely a bone marrow biopsy to see if it's in your bones. There may be other tests, but I think those are the two main ones. After staging, they'll discuss treatment options with you. I found it was helpful to get a second opinion for treatment too, just to be sure. Can you ask your doctor what comes next? Did you just recently get the biopsy results?

      about 4 years ago
    • KStep1day@atym's Avatar
      KStep1day@atym

      I just joined the site, but I was wondering about your progress? Did you ever find out any more info about the staging of your cancer? I am a thymus gland survivor of five years,. I was recently re-diagnosed with four new tumors in my lung, and the pleural lining of my right lung. My doctors just recently told me the stage of my previous tumor from five years ago. I was told that it was a Stage IV/ A & B tumor. It was the size of a large cantaloupe, covering both my right lung and my heart. I am shocked that I was able to carry something that large around in my chest, and still be able to breathe. I agree with the others that your doctor(s) will be able to stage your tumor(s) as you proceed with your treatments. Best Wishes!

      over 3 years ago
    • Ruth1947's Avatar
      Ruth1947

      Is thymic cancer the same as thymus? My son and I are just now going through our journey with this and still haven't obtained any staging yet. Your comments are very informative and helpful. Anyone have any ideas for financial help for cancer, we live in houston. Really want to use M.D. Anderson but don't know where to begin.

      over 1 year ago
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    CJhouse shared an experience

    Oh No (Other): Going to a different hospital that may have more trainning then the one I am at U.F.M. Michigan