• clay's Avatar

    clay asked a questionHead & Neck/Throat Cancer

    feeding tube insertion, does it hurt post op?

    7 answers
    • planogirl60's Avatar
      planogirl60

      kenw in response to the removal of your PEG tube. I had my removed in the Dr office. Really wasn't a big deal. Minimal discomfort. It just pops right out. I'd like to say it "smarts" at best.

      over 4 years ago
    • thestarr's Avatar
      thestarr

      When I had my tube inserted before chemo and radiation the doctor refused to give me pain medication. Why is beyond me to understand. It was extremely painful the first few hours. After about 5 hours I was fine....no problem. When I had it removed it was a piece of cake. Hope this helps.

      over 4 years ago
    • Jonsie's Avatar
      Jonsie

      Having a lot of pain in feeding tube area. Could something be clogged etc..Has any one else noticed this pain.

      over 3 years ago
  • clay's Avatar

    clay shared an experience

    Procedure or Surgery (restraining face mold to hold my head in place for radiation.): It was not easy to remain in one place for so long , it must have took and hour to get the mold correct. all the while not moveing a muscle. It was like a super long ct scan.

  • clay's Avatar

    clay asked a questionHead & Neck/Throat Cancer

    I am very worried that I will not be properly treated for pain due to presciption drug abuse in the past, namely opiods.

    7 answers
    • vet613's Avatar
      vet613

      Clay,

      I have had previous experience with prescription drug issues (morphine) when I was wounded in the service. I finished treatment in March 2012 for Stage IV SCC on the base of tongue.

      During treatment the various VA Doctors kept telling me that the hydrocodone maintenance I have been on for several years due to those past injuries would not be enough to attain a livable comfort level. I finally listened to them and got on a regimen of stronger drugs to control pain. When you are properly using the pain control drugs you will have no problems. Do not be afraid...and do not do as I did and wait until the Dr. is virtually chastising you for failing to control your pain. It is enough of a challenge to be treated without making your life more miserable than necessary. Controlling pain will aid your recovery and help you sleep. You have my best wishes for a successful treatment.

      Have as of good holiday season as you can and stay focused on what is going on TODAY. Do not (and I understand how difficult it can be) "project" on what "could happen" stay as positive as you can and all will be well.

      My best to you & yours,
      vet613

      over 4 years ago
    • abrub's Avatar
      abrub

      You need to use pain meds appropriately, but if you feel bound to them, then let your addiction counselors know. I know that suboxone is usually given in a supervised fashion. As for meds not being addictive when they have pain to address - not so. I became addicted to Tramadol after being on it round the clock in the hospital for 4 weeks. Fortunately, I was not mentally addicted, and was able to set my self a weaning schedule (decrease by one daily pill every 3 days.) It took 3 weeks. However, I was recently on Tramadol again, this time for the short term (a week, and not regularly) and had no problems with it.

      over 4 years ago
    • clay's Avatar
      clay

      thank all of you for your input. It is good to know that I will be treated apporpriately. I have been fully honest about my addiction, so i go ahead with greater comfort about the whole pain issue. again thank you.
      (dont know if I posted this response in the correct fasion, I as you can see posted it in the answer question area. tried to click respond but nothing happened.)

      over 4 years ago
  • clay's Avatar

    clay asked a questionHead & Neck/Throat Cancer

    hello , I was told today that I would have to have a friggin feeding tube during treatment. sounds scary and dont know what to expect. help!

    15 answers
    • xxx19xxx's Avatar
      xxx19xxx

      HI,
      I HAD THE SAME DISEASE LAST YEAR AND WAS ALSO TOLD TO HAVE A FEEDING TUBE INSTALLED...........I REFUSED AND GOT THROUGH IT OK.......IF THEY HAD TOLD ME IT WAS "URGENT" OR SOME "EMERGENCY, THEN YES I WOULD HAVE GONE FOR IT. I JUST THOUGHT IT WOULD BE ONE LESS HEADACHE TO WORRY ABOUT. I HAD 33 RADIATIONS AND 7 CHEMOS....THE CANCER WAS GONE, BUT HAS NOW RETURNED IN MY LUNGS AND I WENT FOR 6 CHEMOS OUT OF 22..........................I WISH YOU THE BEST OF LUCK.

      over 3 years ago
    • jimhaden's Avatar
      jimhaden

      I had a feeding tube from the day I had tongue surgery to remove tumor and while I didnt like it I know it helped me to keep my weight up.Had to becareful and remember to flush after every feeding. I was able to start swallowing about 2 months after surgery but then had to use the tube again for the last two weeks of radiation. I had 7 weeks of radiation daily so my throat and mouth were sore and I couldn't taste my food the last two weeks anyway. The worst part was getting it out. I called and asked when it could be removed .Doctor said come on in and we will yank it out. AND THAT IS WHAT THEY DID. I did not know that was how they would remove it .And boy does that ever wake you up. DR. Said take a deep breath and then wow that was when he pulled it out.

      about 3 years ago
    • brendahickle's Avatar
      brendahickle

      Hi Clay , I was feeling the same way you are. When they told me that I would be needing one ' I thought yea write not me ! " Well 8 yrs later I am very thankfull that I followed DR. orders. At first I would not use it . I did not like it ,it was ugly a I just flat was not going to use it!! Well about 55 pounds lighter and not feeling real well my DR. asked me how much I WAS EATING THRU MY TUBE . ' I THEN told him that I wasn't using it at all . HE THEN INFORMED ME THAT IF I DID NOTUSE IT THAT HE WOULD JUST PUT ME IN THE HOSPITAL AND FEED ME THERE. Well that day I went home ,layed on my bed and just looked at that feeding tube and looked, and looked . I tell you me and that tube became best friends !! I WAS NOT GOING TO THE HOSPITAL ! So for the next 4 yrs we got real close. But, you know the day I had it taken out. it was like pulling a pacifier out of a babys mouth ., it sounded just like that too!! So Clay just lay back on your bed when you get it put in and like it, love it like its your baby ! but make sure you eat because if you do not keep up your strength and your health they will put you in the hospital . ! GOD BLESS AND PLEASE KEEP ME POSTED

      about 2 years ago
  • clay's Avatar

    clay shared an experience

    Oh No (Diagnosed): found lump in my neck its squamous cell carcinoma of the toncil.

  • clay's Avatar

    clay wrote on macthompson's wall

    Hello macthompson, It seems that we have similar diagnosis. It states that your in treatment now. Hope you dont feel to bad. I just got my news very recently. not sure what to expect. I was hopeing you could tell me a little about what your going though and the treatment you chose would be great. thank you in any event , clay