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    CMilkovich asked a questionBreast Cancer

    Fun stuff and Xeloda hand/foot tips

    4 answers
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      I was a sarcastic (expletive deleted) prior to diagnosis. I work on being just the same now. I'm holding onto my sense of humor. I've always said that I'm comic relief. I made it through 2 surgeries (1 where they found the cancer and the other to get rid of it) doing my darndest to make the nurses & patient techs laugh. I've only been back to work a few days, and very few people so far know what's going on. Since I'm starting chemo tomorrow and the hair will soon start falling, I've been letting the word start leaking, but even those who have heard seem so surprised that I'm still my usual silly self. I guess we all just gotta stay true to ourselves and however we have fun. I hope treatment goes well for you.

      about 4 years ago
    • Carol-Charlie's Avatar
      Carol-Charlie

      Hi... "Milky"...(Sorry, my name is Carol, and I didn't want to call you Mrs. Milkovich, too long and impersonal) (my last name is much longer though) ANYWAY.... What to tell them ............ Iwas diagnosed with Stage IV Ovarian Cancer... Right after surgery, groggy from the anesthetic, I asked my oncologist how long I had, as he'd told me that He'd removed a 39 lb tumor, plus everything that had metastized to my intestine and eureatha.. His answer was six month.... That was in February of 2006. Prior to starting chemo... PET CT Scan showed... HE'D REMOVED ALL MY CANCER. We went through with every bit of chemo he had suggested prior to the PET results(almost two years) to be sure we had killed every one little tiny cell that may have slipped off and run off to grow elsewhere. I'm still here and I'm still cancer free... I'd answer "I have a friend (my Tom and do love to fish, up here in MN...and I was born and raised in Bay Village Ohio)... anyway... tell them you have a friend who was told she had late stage Ovarian Cancer and given six months... Tell them that I'm still fishing (we love Walleye and Northerns) and when we're lucky a Muskie will fight like crazy... jumping and.... ) Sorry I got carried away. Tell them you like me are doing what the doctor tells you, loving every day and looking forward with greast anticipation to the rest of your life... Only God knows the number of our days.... is another great reply if they are so thick headed as to persist... (((Hugs))) dear... I have a 48 year old son in Illinois. I put my hand in God's when diagnosed... I asked him to lead me to where he wanted me to be... I'm still following his lead. God Bless You!

      about 4 years ago
    • Richardc's Avatar
      Richardc

      My surgeon wouldn't give me a prognosis. I only completed 75% of radiation and chemo before the wheels fell off. I had the doctor in charge of rehab issue his prognosis - patient is terminal and will never return to work. Three months later, I returned to work. That was 3 1/2 years ago. We found it better to focus on the positives and the things we can do, rather than the what if's or negatives. I did find a "new normal" in my life. The fun things my wife and I used to enjoy together and have discovered we can still do are go golfing, we usually walk 9 holes 2 rounds on the weekends.
      Yes, we made a list and since my treatments have visited Ireland and Alaska. We try to savor every moment and focus on the future. Just one day at a time. If anything, we have adopted the them of celebrate hope.

      In response to Teddyfuzz, - I was not the brave one. It was my wife and caregiver who had to endure far more than I did.

      I don't tell people what my prognosis is. I just tell them I'm doing great!

      about 4 years ago
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    CMilkovich asked a questionBreast Cancer

    I am on Taxol, Flasodex shots once a month, and Xeloda- 5 a day. I now have calluses on my feet. I use a pumice and lotions. Suggestions?

    • Cheryl2's Avatar
      Cheryl2

      I'm not on those medications. I do have an ongoing problem with calluses on my feet. I shower every morning, at the end I use the pumice stone. After drying, I use O'Keefe's Healthy Feet and put on socks. I almost never go without socks, it seems to help. At night, I use Healthy Feet again at bedtime, sometimes in winter I put on clean socks. I've tried lots of lotions, but Healthy Feet works best. It has glycerin which really softens. Another idea is to put on the lotion and put plastic bags over your feet. It works kind of like a sauna for your feet.

      about 4 years ago
    • wvgal68's Avatar
      wvgal68

      When I was on Ifosfimide, my doctor prescribed 50mg B6 to help prevent hand/foot side effects. Not sure if it would help or not.

      about 4 years ago
    • Devon's Avatar
      Devon

      I use a PedEgg! It's in the As Seen On TV section at CVS, WalMart type places. I give them away as presents and people loooooove them!!

      I also out vaseline on my feet and then put socks on. You can either sleep in them or wear them with shoes. People always look at me crazy when I tell them but I don't think it feels weird, and it really helps!

      about 4 years ago
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    CMilkovich wrote on Kila's wall

    Hello Kila-
    I am 48. I was diagnosed in May 2010 with Stage 4 with mets to my lungs and bones, now they are in my liver. I am ER positive. Currently on a cocktail of Xeloda, Faslodex, and Taxol. I am trying to find more people like me. The people I speak with have had lumps, had them removed, and are now clear. God Bless them. It's not me. I need some help with hints on how to feel better. I maintain a healthy diet, exercise, etc. Take better care of myself than I did in years, now because I have to. I have 2 teenage boys and am grateful they are helping me through this. My wonderful husband too.
    Wishing you the best. I know this is difficult. Seems like there is always something. I have never been side effect free.
    Regards, Carolyn

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    CMilkovich shared an experience

    Side Effects (Anemia (low red blood cell counts)): Dr. gave me an Aranesp shot for my swelling ring finger and numbness. Shot definitely helped. Unsure how often I will need this.
    I currently have a bad sore throat and flu symptoms. - I have script for Magic Mouthwash- definitely helped. I'll see how the next few days go. If this is it, I am lucky.

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    CMilkovich shared an experience

    Drug or Chemo Therapy (Chemotherapy): I am currently on Xeloda, Taxol, and Faslodex. Side effect so far is flu symptoms, bad soar throat. Taking Magic Mouthwash. Take vitamins, E, D, Milk Thistle, Fish Oil and Hair,Skin,Nail, vitamin.