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    coffeybrook wrote on arlen's wall

    thanks, confirming I rec'd the number. Will call later in day.

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    coffeybrook wrote on arlen's wall

    Thank you for your comment on the NIH trial. For some reason I didn't get notification so only saw it today. I am looking into clinical trials as an option to stem cell transplants, but my oncologist says that CAR-T is very toxic. Do you know if the NIH trial you mentioned is still active? Does it have an identifier I can search in their database? Would love to discuss further ftf since you've had experience with what sounds like my situation but the site doesn't permit private exchange of email addys.

    3 Comments
    • arlen's Avatar
      arlen

      Would love for u to speak w my husband that went thru it
      Not sure how to coordinate

      over 5 years ago
    • coffeybrook's Avatar
      coffeybrook

      The "Help" section on the banner has an "Exchange Emails" topic (#17 under About Using What Next) but I can't seem to find it. I've emailed the site to ask for assistance.

      over 5 years ago
    • arlen's Avatar
      arlen

      Can u contact three zero one three zero nine six six four nine

      over 5 years ago