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    PennieEckard wrote on collinsb01's wall

    Hello collins01. How are you? We have not heard from you in a while.

  • collinsb01's Avatar

    collinsb01 shared an experience

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  • collinsb01's Avatar

    collinsb01 shared an experience

    Oh No (Cancer has spread/Metastasized): I have been in California since June 4th. My visit started out well, then things took a turn for the worse.
    I am now under hospice. I am on oxygen 24/7, my saturation level is at 77%. On my left side I have blood clots. I had pneumonia that started on my left side and has now traveled to my right. Also on the right I have plural effusion of the lung.
    I am no longer taking coumadine. Overall still holding my faith. I know that God is good and will help me through.
    Love you all my extended family

    5 Comments
    • shauna0915's Avatar
      shauna0915

      Sending all the positive thoughts, energy and prayers I can. Much love coming your way!

      over 4 years ago
    • Blue's Avatar
      Blue

      Are you still in California? Do you feel you will do better there?

      over 4 years ago
    • RuthAnne's Avatar
      RuthAnne

      Praying for you to be given the strength to face whatever comes.

      over 4 years ago
  • collinsb01's Avatar

    collinsb01 shared an experience

    Oh No (Cancer has spread/Metastasized): Had a CT scan 05/25/12. Results showed progression to the left lungs, increased number of lesions on liver and more mediastinal lymph nodes affected. I now know what cancer pain is. Because of the pain, I was taking pain killers that contained codeine. Apparently, the codeine was making me nauseous so I couldn't keep my food down. Thank God for the tenfanyl pain patches that have reduced my pain by 95%. While this is not the best news, it's also not the worst. I am expecting to be placed on Tarceva for my next chemo and will continue to do what I can while continuing to hold on to His hand. Right now I am visiting with my family in northern California and am looking forward to a great vacation.

    1 Comment
    • DaveWaz's Avatar
      DaveWaz

      Have an amazing vacation - you deserve it!

      over 4 years ago
  • collinsb01's Avatar

    collinsb01 shared an experience

    Oh No (Cancer has spread/Metastasized): I had the second of this three rounds of Alimta. Was informed by my oncologist that the pain I have been experiencing in my left ribs is quite possibly another met to the bones. He thinks it might have been too small to show up in the last scan. I kind of feel this was the situation, because I really feel more in tune with my body (does anyone else feel like this?) but I will keep an open mind because I have turned this over to God. I just have to let Him do what He said He would. We will have another scan done in about 5 weeks (I will be visiting kids and grands, father, brothers & sisters in California) to see if this is actually showing up as a met now or if it could be a bone fracture. While this is very disturbing news, I am determined to be faithful to my God and share the testimony that He has given me so far until (borrowing from RuthAnne) there is nothing else for me to do here. Your prayers are solicited for my family for they just don't see things exactly as I do. My love to each of you, my extended family.

    2 Comments
    • Blue's Avatar
      Blue

      Best of luck to you. There is something healing about the idea of surrender and trust to medical and spiritual forces, whichever works best for each of us. Sending best thoughts your way.

      over 4 years ago
    • shauna0915's Avatar
      shauna0915

      I will keep you and your family in my thoughts and prayers. I know it is often difficult for family to understand why a Survivor makes some of the choices they do, but it is your body, your fight and your life so it makes sense for you to do what you feel and believe is right. You have not stopped fighting and you have kept your faith. Your family may be scared when you say you have "turned this over to God" because it may seem to them that you are giving up... just a thought. Maybe they don't fully understand that you are still seeking treatment and going through followup scans and such. I know it would scare me if my loved one said they were turning it over... raised with certain beliefs, I would think it meant you were no longer going to treat or monitor the cancer and would just let whatever happens happen. I know that's not the case, but you're family may not. I will pray for them to have the strength to get through whatever is coming and to understand the choices you make in YOUR care. God bless and stay strong! Much love... you ARE family!

      over 4 years ago
  • collinsb01's Avatar

    collinsb01 posted an update

    Day eight of my ten day radiation therapy. I get home and sleep for about five hours! Yes today was strange. I have begun to have a pain on my left ribs that can get awful. I can actually feel a sore spot on the outside. But the pain that is generated internally can get very bad if I don't get a pain pill going in time. I still get a little pain in the back from the bone met, but it's taken care of easily with a pain pill. Now that I have the bone and liver mets, I seem to feel like my health is declining. I don't have that overall feeling that "all is well" anymore. I now have the pain in my back, buttocks & legs; I have this pain in my rib area; I have a wierd cough all the time; I am now coughing up thick phlegm; my mouth keeps going dry; I am getting nauseous more often (maybe because of the pain pills); and I am tired a lot. Is this where it starts to go downhill? Or is it a mind thing and I just need to stay positive?

    Another thing - I just lost a first cousin to stomach cancer. She has known about her illness for about one year. What really gets to me is that she went from feeling just fine to hanging by a thread in just three weeks. We lost her sister in 2010 to lung cancer. Maybe this has something to do with haw I'm feeling with my illness now. I believe this is one of those times when I would look back and see one set of footprints in the sand.

    3 Comments
    • shauna0915's Avatar
      shauna0915

      You stay positive no matter what! The cough and dry mouth could be a side effect of the radiation. Try Biotene gum or mouth spray to help with the dry mouth. Keep your meds on a regular schedule...even the pain meds. Don't wait until you hurt to take them...then it's too late and you have to take more to get ahead of the pain. If you stay on a strict schedule with your pain meds, it's easier to manage the pain. Only He knows when it's our time to go, so don't be consumed with whether this is where it starts to go downhill. Take things one day at a time...like you've been doing. I wish you all the best.

      over 4 years ago
    • RuthAnne's Avatar
      RuthAnne

      I believe that a big part of living with cancer is the head game. Any piece of knowledge (I have a liver met!) orpain (my back is killing me!) can become, in your mind, just another step down the latter to eventual decline and death. This happens to me every time I get a scan. I start feeling strange pains (uh oh! The cancer in my liver is growing! I know it!) and I convince myself that this is it. I feel worse and worse until I go to my doctor appointment. I can hardly believethe doctor when she tells me that things are stable. Then magically, I stop feeling the pains. I can think about life again instead of the dastardly cancer. For me, it's not so much thinking positively as just not falling down into the cancer black hole. This, of course is more difficult when you're tired or bad things happen. Keep putting one foot in front of the other. Whatever happens, you'll make it through.

      over 4 years ago
    • DaveWaz's Avatar
      DaveWaz

      I'm sorry you are going through a rough time. I think you've gotten some great advice and support here. I know you are a woman of faith and your faith will see you through. And we are here to do whatever we can to support you. Sending you a lot of love.

      over 4 years ago