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    computurtl asked a questionNon-Hodgkin Lymphoma (NHL)

    Does anyone have any advice on how to get a Waldenstrom's patient to eat?

    • Diansky's Avatar
      Diansky

      Computrtl, I am sorry to hear that your mom is having so much trouble. Based on reading some of the things on your profile page, I wonder a few things. It could be one of her medicines is causing her overall lethargy. It could be a general depression, for which meds can help. if her thinking has been clouded by a condition like dementia, she just does not see the point. How is stepdad eating? Are they both in some danger from lack of proper eating?

      A good dr, maybe a geriatric specialist consulting with her cancer dr, could help with some answers. She may need an overall work up to get to the cause.

      When my cancer was kicking in, I had a lot of trouble eating. I felt nauseous most of the time. I also had, it turns out, anemia. So, her not eating could be a clinical sign, and not a sign of her willfully ignoring her best interests. She is definitely having a problem when she does not feel up to bathing, eating and rejects home health aid. Frankly, I felt the same way as mom seems to feel now. Only my desperation at my total exhaustion drove me to the dr and I was very sick by that time. That is just background for my experience and why I feel like I csn identify with mom. I did not bathe, either; it was just too much.

      If she is just not up to considering 3 meals a day, then, if they could eat multiple small meals every few hours, that might help. As a friend of mine suggested to me, put something in your mouth every 2 hours. That idea helped me in my recovery after surgery when the very idea of eating was so hard for some reason. Yogurt, a sandwich, noodles and butter, an egg, High protein drinks, like Muscle Milk or high protein Ensure. (These are lower sugar drinks. The high sugar ones made me nauseous.) She also needs water. My dr suggested keeping a glass of water everywhere and sipping it. I did get back into the habit of eating and am aware when I am not eating, which is part of solution.

      It may be she is overwhelmed by her situation and stepdad's and, being befuddled, she cannot she a way through it. So, she does nothing and will allow nothing to be done because she does not think it csn help.

      This is all a long way of saying it sounds like her situation is more than tempting her to eat and she, and you, and step dad, need more professional evaluation of her condition. One responder pointed out that she may just need to be overruled in her choices. Maybe so. Something is simply not right, as you have determined. I wish you the best as you try to navigate this tricky path.

      over 5 years ago
    • Schlegel's Avatar
      Schlegel

      First, the home health aide should be bathing her. That's what Medicare is paying for. As for eating, let her eat what she wants to eat and don't worry about a balanced diet. If she wants ice cream for breakfast. let her have it. You might want to ask a nutritionist or dietitian for suggestions. Ask the doctor for a referral.

      over 5 years ago
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    computurtl shared an experience

    Side Effects (Memory changes): Mom has become confused, disoriented and even delirious. She thought that her anniversary was that day (in June) when her anniversary is in April. She didn't know who my sister was during one time on the phone with her. Then her mental acuity came back and she knew her again and knew who I was (her other daughter).

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    computurtl shared an experience

    Side Effects (Eating problems (anorexia)): After having unexplained (saw several doctors) abdominal pain, Mom is refusing to eat. Don't know if it's fear or stubbornness. She just won't eat. So very frustrating to not know how to help her or motivate her to eat.

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    computurtl shared an experience

    Side Effects (Diarrhea)

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    computurtl shared an experience

    Side Effects (Constipation)