• Connie1950's Avatar

    Connie1950 started following

    User: CancerNews

  • Connie1950's Avatar

    Connie1950 asked a questionColorectal (Colon) Cancer

    No treatment

    7 answers
    • CAS1's Avatar
      CAS1

      Go right to the Hospital Administrator . Call them or better yet go into their office and see them.
      Demand that your mother sees Hospice "RIGHT NOW" .

      I was in hospital once before my cancer.. Was not getting the treatment I should have so I picked up the phone and called the administrator and demand she come and see me..I was then treated like a person...It works

      about 4 years ago
    • Flowers55's Avatar
      Flowers55

      For us the National Cancer Institue has a great chat - just closed on week ends - if she is that sick why not call an ambulance??? Also when I was bed ridden they used a nice spray made specifically for that - does not need to be rinsed - I saw someone take this spray (but they also have cremes, soaps and a foam that makes my best friends rear after surgery feel good) put in in a large size freezer zip bag, shack it up with warm water and you have a mini-sink to wash from - does you state have a Center for Aging - is there a Senior Center close by - they have information about agencies - and I even received information that really helped my daughter - that fecal problem can also be very dangerouse germ wise - re: e.coli - again if the Doctors and everyone say she needs to be in the hospital - call the ambulance -

      almost 4 years ago
    • KarenN@StF's Avatar
      KarenN@StF

      All good suggestions that have already been made. Would add that getting a new physician might also be part of the answer. Choosing to forego treatment doesn't mean there is nothing to be done to give your mom the best quality she can have for whatever times she has left. Everyone deserves compassion. Good Luck!

      almost 4 years ago
  • Connie1950's Avatar

    Connie1950 started following

  • Connie1950's Avatar

    Connie1950 asked a questionColorectal (Colon) Cancer

    no treatment recommended

    8 answers
    • Clyde's Avatar
      Clyde

      Get a second opinion and make it clear to the doc that you want to understand what is going on, not just be advised of what to do or not do. Don't be afraid to be agressive if necessary to get complete answers.

      about 4 years ago
    • CAS1's Avatar
      CAS1

      Please make sure you are at the best Cancer Center you can find. You must find an ONC ( Oncologist) who is a specialist in colon cancer.

      Make sure you request copies of all material including any pathology reports, medical tests on a DVD disk and any and all blood work etc. Don't take No for an answer. Make a binder and always get copies of everything.

      Now about treatment. There are numerous targeted drugs that are much easier on the system than Chemo but even Chemo is diffrent with everyone. But at 82 year sold your Mother, after being told of all of her options, should be the one to decide what treatment she would like to have NOT the Doctor deciding what she will have.

      Right now we have immunotherapies that are curing people..Yes, albeit a small number but they are curing some people and we have targeted treatment prolonging lives by years..Please look into your options you have them.

      about 4 years ago
    • AlizaMLS's Avatar
      AlizaMLS

      Dear Connie,

      As I've said several times on WhatNext, it's helpful to get a consensus from different people on the site-it permits you to see things from different perspectives at a time when you may feel too overwhelmed and and then you can get a sense after hearing from us (patients with all types of cancer who have gone through our own experiences [and even sometimes as caregivers as well] and some medical professionalswhat we'd do in a given situation). Besides a BC patient, I'm a (retired) Medical Librarian.

      I see that one of the members of the group told you to let your mother decide. That is a good decision, provided that your 82 year old mom isn't: 1) too overwhelmed (by being too elderly & frail. 2) has enough insurance to cover all her options (so she doesn't end up in a nursing home against her will to live out her days) and 3) will lose out her property (unwittingly) because an ElderCare attorney has not been consulted.

      I empathize with what you're going through. Before I had BC, I was a caregiver to both my late father who had CLL and died 3 years ago after a 6 year illness and my late mom who died a year and a half ago from a Cerebral Hemorrhage (brought on a Dementia [not Alzheimer's]). She was verging on requiring Nursing Home care at the time of her Cerebral Hemorrhage (becoming a danger to herself because she'd starting not to recognize us (her family) nor follow instructions. If she'd entered a Nursing Home, she/we'd have lost everything (her Home and estate, plus we'd have been practically living at the Nursing Home in shifts to make sure she was properly treated (she'd been in rehab before so I know about this). Fate intervened. She was lucky because she never wanted to live out her days that way when she was lucid.

      This is tough stuff and not for the faint of heart. Definitely get an opinion from an established oncologist, but ask yourself also whether your 82 y o mom has the mental/emotional stamina to deal with the rigors of chemo or whether palliative care may be a more comfortable and suitable alternative, difficult as it may be for you.

      I'm not meaning to stir the pot for you-merely make you consider what's truly in your Mom's best interests. Also, not meaning to be crass, just sensible, if you haven't yet done so, it's probably an good time to consult an ElderCare attorney. Practical issues must be faced if they have not been until now, and at the least, your Mom needs to have a will, living will, and Health Care proxy in place.

      Wishing you serenity and only the best,
      AlizaMLS

      about 4 years ago
  • Connie1950's Avatar

    Connie1950 started following

    User: SandiD

  • Connie1950's Avatar

    Connie1950 shared an experience

    Oh No