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    contrail started following

    Question: Next Step

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    contrail wrote on mark_k's wall

    What type of small intestinal cancer does the person have that you are caring for. I have small intestinal carcinoid cancer, and if you or your patient have any questions, I might be able to help. It's probably one of the most convoluted, frustrating thing I've ever dealt with because there are so many different symptoms and it seems to treat everyone differently. If this is what your patient is dealing with, contact me and I'll give you some into.

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    contrail wrote on Clairemg65's wall

    Hi, I was diagnosed with Small Intestinal Carcinoid Cancer this last May. It had already spread to my liver and was causing havoc in my body (4 trips to the ER) . Surgery found a metastasized tumor that was removed, but they have yet to find the primary. I'm being treated with Sandostatin every 28 days (probably the same as you).

    Anyway, I just wanted you to know that I'm out here and if you'd like to communicate with me, I'd welcome it. Knowing someone else who is dealing with this crazy cancer gives one hope.

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    contrail wrote on ivyJ's wall

    Hi Ivy! I was diagnosed with small intestinal carcinoid cancer in May of 2013. It had already spread to my liver and was causing all sorts of nasty hormonal affects on my body. I'm currently being treated with a palliative care shot once every 28 days. It pretty well controls the bad episodes of carcinoid syndrome that this tumor causes. I did have surgery and they were able to remove a metastasized tumor from my small intestine, but they have not found the primary tumor.

    I want you to know that my thoughts are with you. Cancer of any kind is not a road anyone wants to travel, but if we have to, we need to do it with as positive attitude as we can, and it sounds like you're doing just that. If you'd like to send me a message, especially when you're feeling low (I've definitely been there), I'd love to correspond with you.

    My thought for the day: " God didn't promise days without pain, laughter without sorrow, sun without rain, but he did promise strength for the day, comfort for the tears, and light for the way,"

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      I could not sleep after 4:00 a.m. That was a wonderful thought for the day. I am going to save it in my document file, and paste it on FB. Have you heard of Lynch Syndrome? It's where the nuclear family has corrupted cells or something like that, on their DNA cancer structure. It's generational cancer. My dad died on chemo at 62, my brother died on chemo at 62, my mom died after her breast cancer metastasized to her abdomen. She was in remission for 5 years, 15 years ago. When it reoccurred she refused chemo' and let herself go. I now have cancer for the third time (and never ate junk food or the like) Now my daughter has a painful lump in her breast . She told me this yesterday. When I woke up I prayed for her. We have a song in the Baptist church that says "Great God almighty, I say what time, my Lord, I say what a time." Each morning I pray, play my gospels that I have downloaded from You Tube to my Real Cloud player program, then I holy ghost dance as my daily exercise. This routine starts my day in a positive mood. Real Cloud Player program is safe to download, then you can download songs from you tube to your desktop. I have found every song I've wanted except one. I've just got the feeling to download, "Will You Know My Name When I see You in Heaven." It's a sad song but beautiful.
      Oh, by the way, I have a pending lawsuit for the nine months Mt. Sinai, NYC, misdiagnosed me. I'm doing it as a way to let doctors know to LOOK INTO THE SMALL INTESTINES. My favorite doctor, who removed my tumor, is writing of my case in one of the prominent Medical Journals. He also wants doctors to not neglect the small intestines. Only about 2% of cancer patients present there, and it's often neglected. I have met 4 people in 6 months that were misdiagnosed with cancer not until they were in stage 3.

      As for the lawsuit, I can't use dollar bills in heaven. Medicaid will probably take it all, therefore I really don't aggressively pursue it .

      Here are songs from You Tube you that might give you a lift. It's good exercise music. On days that I can only tap my feet and clap my hands I do just that. Some songs are slow and I listen to the words and meditate.
      I hope you move to the music or any music of your choice, limber your limbs and enjoy.

      Trouble in my Way by Luther Barnes (Christian song)

      How I Got Over by the great Aretha Franklin (Christian song)

      Because of who your are by Vicki Yohe (she's dynamite!) (Christian song)

      I Need You to Survive by Hezekiah Walker. ( good message for the entire world) (nondenominational)

      What Kind of Man is This? (Christian song)

      'Nice posting to you. Take care. With agape (ah-gah-pay) love shed abroad by the love of God.

      almost 7 years ago