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    country started following

    User: CancerNews

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    country asked a questionPancreatic Cancer

    have i run out of options

    10 answers
    • barryboomer's Avatar
      barryboomer

      Great Suggestions above.....you can check out MY Journey and Profile for a few other idea.
      Good Luck....don't give up HOPE. Any questions you can contact me on my WALL.
      Barry

      over 2 years ago
    • glam's Avatar
      glam

      You can and should ask for a second, third and fourth opinion.....you can also ask his doctors about gene mutations test....I did my one at Foundation Medicine and it is called Foundation One....it basically analyze more than 250 genes of his tumor and state which ones are mutated, which drugs are recommended for that type of mutations and inclusive shows all clinical trials that are in place.....with this information on hand your husband's doctors can set a target therapy for your husband with drugs showed in the report......ask his doctors if they consider it may be helpful...wishing you both all the best....God bless you husband, you and continue blessing all of us

      over 2 years ago
    • FreeBird's Avatar
      FreeBird

      It looks difficult to navigate through the clinical trials by yourself www.clinicaltrials.gov There's also the American Cancer Society's clinical trials matching service http://www.cancer.org/treatment/treatmentsandsideeffects/clinicaltrials/app/clinical-trials-matching-service.aspx I don't know how well that works-- no experience with it. Hit up the pancreatic cancer action network PALS for help searching or to see if they have any other ideas to bring up with the doctor. They were also a good source for me to find doctors with experience for a second opinion. www.pancan.org It also looks like the Lustgarten Foundation may have information on clinical trials http://lustgarten.org/get-informed/FindingClinicalTrials If it's a later-phase clinical trial, I found that sometimes you can find the earlier study and see what kind of results they were seeing early on.

      Also remember that if there's no treatment going on, you can start hospice and come back off of it if you want to seek treatment. Ask them about that if you're interested.

      over 2 years ago
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    Question: Need help

  • country's Avatar

    country asked a questionPancreatic Cancer

    how to be the best help I can be

    5 answers
    • barryboomer's Avatar
      barryboomer

      My care giver is my wife but she doesn't need to do anything yet as I'm still ok.
      She is positive and supportive.
      Check out my Profile for some other constructive ideas as how to go forward.
      Contact me for any questions on my wall.
      Barry

      about 3 years ago
    • Marichela's Avatar
      Marichela

      I have my parents, in the beginning was so difficult to adapt this new stage of life. We literally moved from PR to FL for better treatment. My mom was so mad & rebel sometimes for my situation but then, when she saw my strength, my continuos fight to live, my jokes regarding my condition and the best of all, all the support of a lot of people, she took it all with calm & love. Just do your thing with love, listen the patient & show your comprhension, if need to cry with the patient, do it, that cleanses the soul for all the stress of the situation. And last but not least, Believe & Trust to the Higher Power. God bless!!

      about 3 years ago
    • DaveWaz's Avatar
      DaveWaz

      country,

      Thank you for sharing your question. This is a very popular topic on WhatNext. It reminded me of a few articles we have on the site that have been very helpful to others when maintaining the patient/loved one relationship. Perhaps you will find some of these articles helpful.

      Patient to Loved Ones: 10 Things Cancer Patients Love to Hear
      http://www.whatnext.com/blog/posts/10-things-cancer-patients-love-to-hear

      Patient to Loved Ones: Things We Want You to Know About Having Cancer
      http://www.whatnext.com/blog/posts/patient-to-loved-ones-things-we-want-you-to-know-about-having-cancer

      23 Nice Things You Can Do for Someone With Cancer
      http://www.whatnext.com/blog/posts/23-nice-things-you-can-do-for-someone-with-cancer

      Best wishes,
      David

      about 3 years ago