• CovidCancer's Avatar

    CovidCancer asked a questionLung Cancer

    Being outside in the sun after being diagnosed? Do you avoid the sun at all costs? Or not take any precautions?

    9 answers
    • Dianem's Avatar

      I was always cautioned to use sunscreen, at least 30. And I’m definitely a sun person, so this was a big change. Now, I’m reading that 20 minutes of unfiltered sun a day is a good source of vitamin d which is important. Go figure!

      3 days ago
    • Kp2018's Avatar

      Some types of chemotherapy, like anthracyclines, cause over sensitivity to sunlight. I was advised to cover up any areas of skin exposed while outdoors while I was on adriamycin (an anthracycline). Being covered had the added benefit of protecting me from insect bites.

      3 days ago
    • centered1's Avatar

      I've had 4 cancers in a 6 year period...one of them was malignant melanoma. My doctor told me to cover up while in the sun. I also take a vitamin d supplement.

      1 day ago
  • CovidCancer's Avatar
  • Bug's Avatar

    Bug wrote on CovidCancer's wall

    Hi, CovidCancer. I see you're new to the web site. You have found a great resource here. There are a lot of really wonderful people on this web site - very kind, helpful, and supportive. I hope you find as much support here as I have. I bet you will. Take care.

  • GregP_WN's Avatar

    GregP_WN wrote on CovidCancer's wall

    Welcome to WhatNext, we are sorry for your need to find us, but happy that we can help you. There are a lot of great people here that have already been through what you are facing and are willing to help you get through it too. If you have questions about anything just post them on the Questions Page. Others will chime in with their personal experiences.

    If you need help navigating the site, please contact me, we are happy to assist. We also have active social pages, you may wish to search those out also. Take some time and poke around the site, there is a world of information here that you will find. The more you dig, the more you will find.

    We have an opportunity for you to make your voice heard with our partner Rare Patient Voice (www.rarepatientvoice.com) to be invited to qualify for surveys and phone interviews for projects that apply to you and if you do qualify you will be compensated on a $100 per hour basis. There are pharma companies that would like to hear about your experiences with certain drugs or side effects. Your information might help develop the next generation of drugs.

    Rare Patient Voice will send you an email inviting you to join their panel. If you say no or don't respond to them at all you will not be added to their panel.

    If you say yes be assured your information is only shared with Rare Patient Voice and is treated with the highest degree of confidentiality. If at any time you want to opt-out of receiving invitations to projects you can do so immediately.

    Thank you for joining us, if you have questions please contact us.
    5X Survivor

  • CovidCancer's Avatar

    CovidCancer asked a questionLung Cancer

    Covid saved my life. Maybe?

    15 answers
    • meyati's Avatar

      My X was walking his girlfriends little dogs down some beach stairs. They saw a cat, he got wrapped up in the leashes. He fell and broke his shoulder and collar bone. They found advanced cancer in both lungs. They removed one lung, and he passed 8 moths later. What's sad is that he tried to get the AF, Navy, VA, and civilian doctors to X-Ray his lungs. NIH and Medicare say that non-smokers can't have chest X-Rays unless there is a specific problem- It is so chepa and unfair to everyone but insurance companies.

      He started having heart trouble, and the coroner listed his death as heart failure. The whole family-8 adults took his cancer treatment to the coroner. The coroner modified the death certificate to died from heart failure caused by lung cancer-

      This is one reason I am so mad at Medicare and NIH. They should serve the public-patients-not serve the insurance-congress-money people.

      6 days ago
    • legaljen1969's Avatar

      @meyati. I can certainly understand your anger and frustration. One look at my most recent EOB left me shaking my head in disbelief that what hospitals bill so that insurance can justifiably whack away at the bill. It's really repulsive.
      Healthcare should not be doled out based on the bottom line and profits. Granted, I know doctors and nurses pay LOTS of money to get their training. They certainly deserve to be paid for their knowledge and expertise. Insurance company executives are paid NOT to pay claims. The less they pay out and authorize, the bigger their checks are at the end of the year. Meanwhile, people die because it's not in the interest of the profit margin.
      I am so sorry this happened to your ex. What a terrible situation.

      6 days ago
    • meyati's Avatar

      @legaljen. My comments are with federal government control of my hrslth care. The tell the doctor what he/she has to do, and what they cannot do.

      My husband tried to get chest X-rays from the military and VA in 2 different states. He begged civilian doctors, and that is because NIH says that older people that don't smoke cannot get chest X-Rays unless they have an injury as my husband did..

      2017-I woke up from a combination Colonoscopy and Endoscopy, routine exam, and my temperature and Blood Pressure was all over the place. I couldn't speak, almost couldn't breath, couldn't swallow, etc. I live in a TB state, and we wondered if something was damaged during the endoscopy. My family was spoked after their father was left undiagnosed for about 10 years.Finally, we said--SUE-and I got my chest X-Rays. The X-rays helped my doctors too, they said so. After many ER, Urgent Care, and family doctor, they realized that I had Whooping Cough. Another issue is that the feds said that Seniors couldn't have booster shots. It was a waste of money. After caretakers realized I had Whopping Cough, they gave me the vaccines.

      A year ago to the day, I went in for antibiotics for a bad sinus infection. Medicare care and NIH said that antibiotics caused seniors to have bad stomach problems--SO NO ANTIBIOTICS-
      My doctor prescribed Montelukast. generic Singular. It causes hives, angioedema of lips and eye lids, swelled throat, stomach pain, increases heart burn, causes some to lose their voices, sleep problems, really weird nightmares, hallucinations, suicide, excema,, depression. and a few more goodies.

      It took a year before 2 doctors-specialists-found out what was wrong, and patch work health plan. If I get feverish my lips and eyelids swell up. If a hair touches my face, my whole face starts itching. I still have olfactory hallucinations- I smell lots of vinegar and some chemical smell..I don't know why, but my lips turn way black-I'm Irish. Also, I ended up with my whole face infected

      Doctors are no longer allowed to remove a mole or even do one stitch. One must wait months and months for an opening with a dermatologist. The chances are that a dermatologist won't biopsy the problem too. Think-- How do I know this. Then if a mole or something is removed, doctors are no longer allowed to stitch it up. A senior goes around looking like a torture victim that escaped. Ask me how do I know that.

      I can go on and on about me and the NIH and Medicare problems. I had about 6 incidents. since I turned 65. Before I could talk to doctors and have them listen, now they are thinking about getting paid and not being investigated by medicare-not thinking of me, thank you Medicare for ORDERING doctors to mistreat me-not give me antibiotics for infections. I think that NIH, Congress and Medicare are trying to kill us off.

      Thank you Congress for this, thank you NIH for not considering that I need an antibiotic

      1 day ago
  • CovidCancer's Avatar

    CovidCancer started following