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    User: GregP_WN

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    Decision Point: If you read my "Clinical Trial" experience, you can see where I am at right now...how do I make this critical decision? I am so very grateful to be alive, and I have always been so up-beat throughout this whole fight, but now I am very confused and frightened because I realize that if I stop participating in this trial, I am essentially giving up...do I grin and bear these set-backs in the hopes that medication can alleviate the new symptoms? or do I just say "ENOUGH", I am afraid of what new side effect will come along...being a trial means that the doctors are unsure of the future...Well, here I am several months later and doing much better...medication has brought my thyroid under control with a little weight gain too...a visit to a rheumatologist and a shot of cortisone has brought my hand problems under control for now...yes, I feel the typical muscle aches and pains, almost flu-like in nature, but I have been able to work through them...I have decided to continue in the trial as I have been working, participating in many extra-curricular activities---my volunteer time is primo to me---and basically living a fairly normal life...hey, as long as my quality of life remains this way, I'll keep going until I can no-longer fight...

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    Clinical Trial: I am presently on a clinical trial as all other conventional chemo's have stopped working for me...by "stopped working", I mean that it spread to my lymph nodes and then to my right adrenal gland...the clinical trial began great in that the tumor on my adrenal gland has shrunk by about 50%, and the growing nodes on my neck all but disappeared...I started feeling like my old self again---like before I ever got diagnosed...that was short-lived, as my thyroid gland stopped functioning...they are trying to treat that with medication and they feel that I will feel much better soon---so far, not so, but I keep on hoping...now, I developed rheumatoid arthritis in my right hand---also a side-effect...I guess I'm afraid of what will happen next...of course they don't know cause "Hey, this is a phase 1 clinical trial"...I am at a point where I am trying to decide whether or not to continue...the alternative is basically to give up and undergo a chemo that only slows down the recurrent growth of the cancer...I am at a cross-roads right now...

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    Drug or Chemo Therapy (Chemotherapy and radiation combined): I guess I was one of the more fortunate patients as I had 2 wonderful friends who took me to daily treatments for 3 months...after spending a week in the hospital, they were able to get a handle on what type of pain management they would give me so that I could under-go treatment...the radiation made me very tired and completely lose my appetite, but otherwise OK...the chemotherapy had to be changed after only one treatment as it caused me to suffer a profound hearing loss...since then, I have been on 4 different chemo's, but my body kept getting used to them and they would stop working...I cut my hair all the way down as I was going to lose it on my terms, but to everyone's surprize, I never did...

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    crazycatgirl shared an experience

    Oh No (Diagnosed): When I was first diagnosed, of course I felt total disbelief...how could this happen to me...no-one in my family got lung cancer and they smoked into their 80's AND I've been a good person my whole life so how could GOD let this happen to me...