• cris78's Avatar

    cris78 started following

    User: dan0462

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    cris78 wrote on buddysgirl's wall

    Hello.buddysgirl. I am newly diagnosed with MF. Don't know what to expect. Was wondering if you can share your experience with me.

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    cris78 posted an update

    New to the cancer world. Diagnosed 3 months ago with a rare skin lymphoma. Mycosis Fungoides. Just wondering if anyone has this or knows of anyone with this. Don't know what to expect. Thank you.

    2 Comments
    • GregP_WN's Avatar
      GregP_WN

      Hi Cris, sorry you're having to learn all this and be in this fight. This is a "not so common" type of skin cancer, but others here have had it, try posting this as a question on the questions page and you will get more feedback on it. Posted here as an update the only people that see it are those that are following you, since you just started not so many are following your journey yet. We wish you well.

      over 5 years ago
    • cris78's Avatar
      cris78

      thank you.

      over 5 years ago
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    cris78 asked a questionLymphoma of the Skin

    mycosis fungoides

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    cris78 started following

    Question: mycosis fungoides

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    cris78 shared an experience

    Drug or Chemo Therapy: taking methotrexate

    1 Comment
    • Roborjdz's Avatar
      Roborjdz

      Between January and June this year I went through 6 cycles methotrexate as part of the BFM regime to treat the large Burkitt Lymphoma in my abdomen. The side effects were significant. I lost 12 kg and most of my hair. But the worst part were the mouth ulcers which extended down my throat almost to my stomach. Yuk

      about 5 years ago