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    ctw1966 asked a questionColorectal (Colon) Cancer

    Cancer: The Emperor of All Maladies

    9 answers
    • CAS1's Avatar
      CAS1

      Sorry that is : Thriftbooks.com

      And CTW1966...I was only mentioning the original post so you could see the conversation..Don't ever worry abt. duplicate posts..who has time to back track all posts..Not me and not you..

      over 4 years ago
    • CAS1's Avatar
      CAS1

      I ordered The immortal life book..Thanks..

      over 4 years ago
    • CrazyHarry's Avatar
      CrazyHarry

      Read the book and was totally fascinated by it. Part way through the TV documentary.

      over 4 years ago
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    ctw1966 shared a photo

    Wall_10355748_10204492684371158_8657868570181761704_n

    My sweet Daphne booboo kitty. :)

    2 Comments
    • GregP_WN's Avatar
      GregP_WN

      Thanks for posting, we have a couple of cats now, we have never been "cat people" but I brought home a couple of rescues and now they are part of the family

      over 4 years ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Pretty kitty! I miss having a cat. I have always had one since i was a little child. Unfortunately, my white dog, Cotton, harrasses a cat to death. After my Fluffy died, i decided it wasn't fair to try to bring another kitty into the house. Sometimes my resolve wavers though! I love my dogs a lot, but i miss having a kitty.

      over 4 years ago
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    ctw1966 posted an update

    I met with my oncologist and with a genetic counseling team today. The meeting with my oncologist was to review the CT scan that I had had last week. Basically I am still doing very well for what I am up against and am still doing MUCH better than I was in August 2014 when I started chemo. However, last week's scan shows that a few of the tumors in my liver have grown a bit (luckily none has spread to any other parts of my body). Cancer cells are smart little XXX (please pardon my french, but it's true, they are) and can "get used" to treatment regimens after a while so that they're not as effective. So what will happen now is that we will substitute one ingredient in my chemo "cocktail" for another (oxaliplatin for irinotecan for any of you who are familiar with these things) to try and "trick" the cells into dying. The new cocktail is called FOLFOX + Avastan (the old one was FOLFIRI + Avastan).

    The genetic counseling was interesting and I had some blood drawn which will be analyzed to see if there are any genetic mutations that might make me or my sister and her kids susceptible to any other cancers. It's not likely that there are, but since it's my feeling that an educated patient is the best kind of patient to be, I thought it would be interesting to undergo the exercise.

    I am trying to remain positive as always but it is slowly sinking in that my cancer is being managed as a chronic disease and the goal is to prolong my life as long as possible in as comfortable a way as possible. (this is what my oncologist gently but honestly told me when I asked her if she saw an end to chemo in sight and what my prognosis might be.) This doesn't mean I'm in hospice - far from it! - there are still many treatment options out there for me if need be (mostly chemo; possible immunotherapy maybe down the road, but probably not surgery). But today was a little tough so I went and had a yummy lunch with my former coworkers after my appointments, bought a few new cute head coverings (not sure if my hair will ever come back if I continue on extensive long-term chemo) and came home and took a delicious nap.

    I am glad to have found this resource and look forward to interacting with folks here! :)

    3 Comments
    • NanaL's Avatar
      NanaL

      Dear ctw 1966, I also was 48 when diagnosed with mucinous adneocarcinoma of the rectum. That was in 2010. I have undergone an abdominal peritoneal resection, I now have a permanent colostomy. My cancer spread to my lungs in Sept. 2011. I have been through Folfiri, Folfox, Vectabix, Folfox again and I'm now getting ready to enter a clinical trial. You have a great attitude and that is very important! There are many stage IV patients on this sight who have been beating cancer for years! Believe me I know how difficult it is to hear the words you can't be cured but we can treat your cancer as a chronic illness. Best Wishes to you and don't hesitate to reach out! We are here for each other! Hugs from Illinois!

      over 4 years ago
    • zubsha's Avatar
      zubsha

      There are a lot of options for you now and even more being developed. I know it is tough but I love your approach That polio virus treatment at Duke which has cured glioblastomas of people offered months to live have been used for colon cancer too (I think) That is just one example of the options that will become available Hang in there!

      over 4 years ago
    • ctw1966's Avatar
      ctw1966

      Thank you zubsha - I had heard about that trial on 60 minutes but didn't realize that it had also been used in colon cancer patients too. I'm glad to know that it might possibly be an option down the road.

      over 4 years ago
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    ctw1966 shared an experience

    Decision Point