• Cynthia's Avatar

    Cynthia asked a questionBreast Cancer

    has anyone successfully used a penguin cold cap during chemo treatment to prevent hair loss?

    14 answers
    • shadow2356's Avatar
      shadow2356

      I used the Penguin Cold Caps. They were awesome and I kept all my (head) hair. My chemo was taxotere and carboplatin. I also had herceprin. I had 6 TCH treatments. I was totally thrilled with the caps. The ability to have some control over your destiny is great. I also think that not looking like a cancer patient, even if you are one, is very beneficial.

      To the people who say that the hair loss is temporary, that is not necessarilly true. Taxotere is known to cause permanent hair loss in a small percentage of people. You have no way of knowing you are in that group until it does not come back.

      I was skeptical before I tried it but it worked great.

      I documented the whole process on my blog. The start of the chemo was 12/7/09.

      It is:
      www.maryellenandjulianna.blogspot.com

      Good luck to anyone fighting this fight!!

      over 4 years ago
    • mspinkladybug's Avatar
      mspinkladybug

      Do you know what Hair loss means??? it means let the healing begin! You are one step away from a new cancer free life. Wear your baldness proud just keep a good spf on that shinny head. Hair is sooooooooooooooooo over rated. you are no less a woman with or with out hair with or with out breast with or with out. Society put way to darn much pressure on us woman to look perfect at all times I said kiss my shinny rear to them . once the hair is gone it opens up a new door for you so ENJOY it stop and fill a rain drop on your head fill sun shine ahhhhh enjoy the wonder of it

      over 4 years ago
    • Breastcancer50's Avatar
      Breastcancer50

      I have breast cancer. I'm going through chemotherapy now. I AM taking control of my cancer. And yes I'm using cold cap therapy. I still have my hair. I honestly don't feel like I have cancer. I even have people say your cancer must not be that bad,You don't look sick. And that makes me feel very good. The reason I don't look sick is beacuse I have my hair. People relate hair loss to you must have cancer. I don't want everyone feeling sorry for me.If i lost my hair it would remind me all of the time that I'm fighting cancer. Believe me, I have been through the ringer. After my first chemo I got two infection and shingles. But not loosing my hair gave me the power to get through it with a positive attitude. Believe me I do not take breast cancer lightly. My Mom recently passed away from breast cancer. And my sister is in the process of finding out if she has breast cancer due to a recent lump she found in her breast. It's not about vanity. Saving your hair is a choice.
      I want everyone to know you have a choice.

      about 1 year ago
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    Cynthia posted an update

    Has anyone successfully used the penguin cool cap during chemotherapy to prevent hair loss?

    1 Comment
    • DaveWaz's Avatar
      DaveWaz

      This would be a great post to our Questions section. You can do this by clicking on the "Ask Network" link on your logged in home page or the "Questions" link at the top of this page. When you post needs/questions using our question feature, we route your question to everyone in the network who might be able to help.

      over 4 years ago
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    Cynthia asked a questionBreast Cancer

    How to decide upon hormone only or +chemo treatmen when oncotypes results are 25 right in the middle between low and high recurrence stats?

    5 answers
    • nancyjac's Avatar
      nancyjac

      For me this would be like apples and oranges. Chemo kills cancer, hormone therapy does not but can be effective in preventing cancer by shutting down the hormone receptors in healthy cells. So if you are confident that you are currently cancer free from the mastectomy, there is nothing to be gained from having chemo.

      over 4 years ago
    • Cynthia's Avatar
      Cynthia

      Thank you SO much for your response. Your input is really helpful and empowering. I am sorry to hear of your over treatment, but not surprised.
      A friend of mine had a double mastectomy. She had her first chemo treatment and the next morning a grand mal seizure. Needless to say no more chemo for her.
      How are you now?

      over 4 years ago
    • saltermd's Avatar
      saltermd

      Oncotype is a useful tool but does have the potential to "muddy the water," particularly with an itermediate recurrence score.

      I use oncotype as one part of the discussion about adjuvant therapy. Another tool to try and utilize is Adjuvant Online which uses data about the woman's age, stage, and receptor status to estimate her benefit from both chemo and hormones. Lastly, I consider the woman's outlook on life. We tend to "overtreat" younger women out of fear that neglecting to treat may result in unnecessary risk of relapse. Age, therefore, does sometimes weigh heavily into the decision.

      When in doubt, seek several opinions to help make the decision easier. Best of luck.

      over 4 years ago
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    Cynthia shared an experience

    Decision Point