• daniC's Avatar

    daniC started following

    User: CancerNews

  • daniC's Avatar

    daniC wrote on kirs33's wall

    You are right-you can do this!! In fact, you ARE doing this. Keep going!!

    1 Comment
    • kirs33's Avatar
      kirs33

      thank you. your comment means a lot

      over 2 years ago
  • daniC's Avatar

    daniC wrote on Rbw2012's wall

    Good morning...just saw your profile & want you to know I was Dx IIc & started w/surgery almost 2 years ago & next month am due to get my port OUT!! After surgery, chemo & radiation, now working to get stronger every day. I see you are a friend/family -basically SUPPORT & want to let you know that it made/makes ALL the difference in the world to have people to laugh with along this bizarre adventure. I have been very lucky, my sweetie was at every chemo with me, making a date of it. Thank YOU to you for being there for your loved one & be very nice to YOURSELF along the way. Often times it isn't appreciated how difficult it is for support people. Be mindful of what you need yourself. Including laughter. Every Dx is truly different, response to treatments, health care teams, etc. if you can help turn the absurd, trying, horrifying, painful & unexpected into fascinating, fun & even entertaining, it can help a lot. A pet also is super beneficial. Be kind to yourself & your loved one, no matter what. Lots of people have been through this, but you all haven't yet, so allow yourself to be who you are. Best, best to you both. Danielle

  • daniC's Avatar

    daniC shared an experience

    Other Care (Psychosocial): Friends gave me package of massages to use during treatment & it helped tremendously, from chemo onward!! Plus after my Dx I joined CaringBridge & that was & IS a great way to keep in touch & get support for both me & my sweetie...REALLY important!

    I actually celebrated all along the way. We made all day chemo a date by watching movies & getting take out food for lunch at the infusion center. It was something we looked forward to, with others chiming in about movie suggestions & menus, etc. we watched a lot of bad/good sci fi flicks that provided both humor & distraction. At the end of Radiation I baked a XXX Cake for the team, w/all the drawings they made on my own XXX decorating it-memorable & delicious. I say do what you have to do & try to have fun as you are able. It IS all ridiculous & a bit surreal, after all.

  • daniC's Avatar

    daniC shared an experience

    Celebration (Finished treatment)

  • daniC's Avatar

    daniC shared an experience

    Radiation (External radiation ): From the beginning I had issues " tolerating" the radiation, resulting in diarrhea, re-adjusting " my fields"- the areas targeted to spare healthy tissues, etc. I ended up on morphine, not for pain, but for the side effect of constipation, which I did NOT have...just finally almost not constant diarrhea!! Even my Radiation Onc was " impressed" with my active bowels! Seems to be the problem for many, constipation, but not for me. Plus I have always had a good appetite & luckily still have taste, but keeping things down required a lot of plain chicken for protein & white rice & some non dairy nutrition drinks like Boost. Radiation was BY FAR more of a challenge for me than chemo. So, it really IS different for every person. Adjust, adjust, adjust...you can do it!!

    1 Comment
    • Mame's Avatar
      Mame

      I had non-stop diarrhea too. Not due to chemo which I had or radiation which I didn't. I had it because of the radical surgery I had to have. I was Stage III and had to have my gall bladder, spleen, and 7 feet of intestion, plus half of my colon removed. I had diarrhea for 3 years and still have it if I eat greasy foods. However, this is a small price to pay because the quality of my life is very good. I have lots of strength and can keep up with my amazing grandkids!

      about 4 years ago