• darl's Avatar

    darl started following

    Question: Stage 1

  • darl's Avatar

    darl started following

    Question: POLITICS

  • darl's Avatar

    darl started following

  • darl's Avatar

    darl asked a questionMultiple Myeloma

    I just had a pet scan that showed a lesion and uptake activity. My Dr. says wait 6 months.

    9 answers
    • meyati's Avatar
      meyati

      I had my scan 3 months after treatment ended. The reading radiologist said that I had a different type of cancer in my tonsil area. I knew that I had one tonsil stub left from my first grade tonsillectomy. I went into my ENT, who removed the tonsil stub for biopsy and biopsied tissue samples from my mouth and throat. Negative----

      Part of my lip was cut out -so I have a chicken lip there. In the last scan--the different reading radiologist noted that he suspects a unexplained growth in the normal lips. My oncologist and I both cracked up.

      almost 2 years ago
    • darl's Avatar
      darl

      I had a biopsy in September and it was positive. I have started chemo: Velcade, revilimid and dexamethasome. The myeloma is a single plasmacytoma in my sternum which makes my mandible really large and noticeable. Sometimes I feel like it is choking me. I wish they could just take it out. I pray the chemo gets rid of it and puts me in remission.

      about 1 year ago
    • BoiseB's Avatar
      BoiseB

      Thank you for the update. Putting you on my prayer list.

      about 1 year ago
  • darl's Avatar
  • darl's Avatar

    darl shared an experience

    Decision Point (waiting to see if pet scan shows scar tissue or cancer still)