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    DarleneDavis shared an experience

    Decision Point

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    DarleneDavis shared an experience

    Loss

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    DarleneDavis shared an experience

    Oh No

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    DarleneDavis asked a questionBreast Cancer

    How did you feel when diagnosed withTriple Negative Breast Cancer knowing there is no recourse after treatment?

    5 answers
    • leepenn's Avatar
      leepenn

      I think this is a two-sided issue. On the one hand, it's WONDERFUL that I don't need to be on drugs like arimidex or tamoxifen... with all their side effects and everything. On the other hand, it SUCKS that I don't have something that's proven to reduce the probability of recurrence.

      For me, I had a complete pathological response with neoadjuvant chemotherapy, so added drug therapy would not drastically reduce my chances of recurrence. In fact, my chances of recurrence are estimated at about 5% because I had that complete pathological response. So... that's quite good. So, at the end of the day, I'm in the grateful camp, actually. Also, chemo tossed me into menopause, and because I had triple negative breast cancer, I was able to start hormone replacement therapy...

      There are some clinical trials going on looking at longer term drug therapy to cut down on the chances of recurrence.

      This XXX is scary - no doubt.
      I am trying to keep my attitude positive... and to keep my mind on LIVING rather than worrying!

      Good luck. I wish you a peaceful afternoon.

      about 5 years ago
    • MarnieC's Avatar
      MarnieC

      Hi there DarleneDavis - I read the article that ticklingcancer attached and it's a good one. The author discusses the importance of exercise and nutrition in battling TNBC, but left out one more thing that really helps: the body/mind approach. I used meditation and visualization during my breast cancer treatment (8 yrs ago) and still do it now. I am in great health. I also wrote this article recently on TNBC: http://marnieclark.com/category/triple-negative-breast-cancer/
      If I can help you in any way, Darlene, please let me know. I'm in the process of creating some meditation/visualization MP3s to help others with their healing - you might like to sign up for my newsletters so that you'll be aware when I get them done. Sending hugs!

      about 5 years ago
    • ConnieB's Avatar
      ConnieB

      @nancyjac ~ my Oncologist and Surgeon both told me that DarleneDavis is right about triple negative breast cancer and recourse/reoccurance possiblity.

      over 4 years ago
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    DarleneDavis asked a questionBreast Cancer

    After Chemo was completed, did you experience more pain and side effects than when you were going thru Chemo?

    • nancyjac's Avatar
      nancyjac

      Well yes and no. During chemo we are generally very focused on the less suble side effects that occur very predictably with each cycle....stuff like nausea, diarrhea, and other stuff that demands your attention whether you want it to or not. So some of the side effects that tent to be cumulative don't get noticed as much until you have finished with chemo. But there are lots of what are called delayed side effects that can crop up months or even years after chemo such as peripheral neuopathy, and lymphodema.

      about 5 years ago
    • IKickedIt's Avatar
      IKickedIt

      I'm with nancyjac on this one. I had a whole gamut of side effects while I was going through chemo. I just went from treatment to treatment trying to handle the side effects and possibly off-set or lessen the intensity, and also predict when I'd have my good days and bad days so I could keep on living as best as I could. My mantra at the time was, "Ya gotta do whatcha gotta do."

      A year later, my mantra is now, "It ain't over when it's over." Unfortunately, I have a lot of damage from the chemo and am struggling with the delayed side effects. I just keep reminding myself, however, that I am alive and cancer-free and that is ultimately what is most important. If this is the new me, then so be it. It's frustrating, but I keep reminding myself of the alternative and it helps me deal with my whole new set of physical ailments. Anything is better than being on chemo!

      about 5 years ago
    • PASE's Avatar
      PASE

      Yes yes yes yes. My side effects suh as peeling skin, toe nail pops, bone pain, shooting pains, joint in hips etc.... are far worst and I am 5 months past chemo. I had a bone scan done because I was in so much pain I could not sleep. Now I am taking diferent drugs that help a lot.

      almost 5 years ago